Category Archives: a day in the life of a cancer patient

SYNTAX


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What do you mean by that?  How many times have you said that?  How many times have you heard something come out of someone’s mouth and can’t believe he/she said that?  We have to leave The President out of this because everyone would say that about what he says.  This is about people in your day to day life.  Syntax, how a simple statement is made to reek of negativity, condemnation or condescension.  Syntax,

Syntax refers to the composition, or the arrangement of words used to portray a meaning.  Bad Syntax, in my opinion, doesn’t just refer to poor word arrangement, but the arrangement of words to portray a poorly emoted meaning.  I think it was my Mom who always used to say, “it’s not just what you say, it is how you say it!”  Me, I am all about that.  Lately more so than ever.  These days everything seems so dark and dreary in a way, so why not take any chance possible to lighten or brighten things up.  For example, instead of asking the question “WHY would you do it THAT way? That makes it look smaller!”  Maybe phrase it, “I ‘m curious as to why that is the better style? Does that make it seem bigger?” Here you are asking for the same information, just with a lighter approach.  Again, it is how you say it.

Most don’t hear themselves when they speak.  So, when you point out that they sound harsh or stern (angry even) they are taken aback.  Often becoming more argumentative.  I have been accused of that from time to time, and when pointed out I quickly look for the better way to say the same question (and apologize for using poor syntax). Nobody is perfect – and now there is even a slang for it…MY BAD! But if we all just took a second to hear ourselves (maybe even record yourself once in a while) you may learn how you sound to others.

I often use a story form 1982.  I was 20 and just diagnosed with Hodgkin’s Disease.  The next morning, I was being operated on – I was losing my Spleen and part of my Liver. Not feeling particularly light (though I was optimistic about the end results). I was having this done at Tufts Medical Center (a teaching hospital – you know with all those seemingly clueless interns like you see on the TV shows).  So, before Dr. Detterling was to arrive, a young intern came to explain what was about to happen.  He spoke fast and curtly and in ‘medical talk’ that I couldn’t understand anyway.  Trying to lighten the mood I asked: “It’s all gibberish to me, so could you just tell me am I going to live or die?” (I was joking of course).  This Intern looked me straight in the eye and solemnly said: “I cannot predict the outcome, Cancer is a very serious disease!”  I was actually too stunned to talk.  Frozen actually.  Luckily as I sat there on the precipice of an emotional breakdown, Dr. D walked in.  His hands and body shaking (in a put-on kind of way), he says “Do you need the scare to be perfectly straight?”  Some of the interns giggled and I relaxed as much as possible.  That lightened the mood immediately.  It isn’t what you say it is how you say it!

This is such an important lesson for everyone.  Interpersonal relationships, business relationships, co-dependent relationships J, can benefit from understanding this.  How many times have you walked away out of a restaurant, a store, or after dealing with a rude person?  Aren’t you soured on that place or person?  And all it would have taken is for them to tell you the same thing in a different way.  These days we read the papers and are meet with Shock and Yawn.  We don’t know whether to cry or hibernate for a while.  If we could just learn that what we say and how we say it matters.  If we could just learn to be positive and light- instead of Angry and Argumentative we can emerge shaky yet optimistic!  I hope for that! The Sun WILL come out Tomorrow!  Bet Your Bottom Dollar that TOMORROW they’ll be Sun and Syntax!

Enjoy, Be Happy and Be Understanding!

Carol

@funnycancermom

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Who’s In Charge Here?


Recently, my kids and I were talking about the show “The Biggest Loser”.  There was a commercial clip on showing Jillian screaming at one of the contestants.  I said, “wow she seems so mean, how can that be motivating.”  I was sure my children would agree with me (since they are forever telling me I’m a yeller, and it definitely isn’t motivating for them).    But, yet again, my kids surprised me.  My daughter said, “Mom what she is doing is changing their lives.  She is helping them get better for their kids and that is a good thing….you just yell about homework and stuff.  Totally different!”  Matt said, “having to answer to someone all the time is good for you when you are trying to change something about yourself.”  And while I wanted to tell them that cleaning their room or doing homework, or even being true to yourself are also good ways to change something about yourself…But I thought better of it!

 

It did get me thinking, however, is being accountable for our own actions and being true to ourselves the same thing?.  For example, I was on Facebook the other day….just roaming through to see what people (“friends”) have posted…I like to go on a few times a week and check-in.  There are always the same 3 “friends” that post 20x times a day.  No exaggeration…If I were being true to myself, I would send them a message saying, “99% of the stuff you say is absolute drivel.  Why do I need to hear that your dog is tired, or you were tired after taking her for a walk, or that I should be Happy because it is Sunday, Bitches!” Really, what is the purpose of that?   But, I am accountable for these words, and I realize they seem harsh and uncalled for (though true).

 

These Facebook dwellers live their private life in this public venue but instead of being angry at them, I should feel more sympathetic towards them…I guess it is a modern day depiction of Shakespeare’s soliloquy in Macbeth…

 

…Life’s but a walking shadow, a poor player

That struts and frets his hour upon the stage

And then is heard no more. It is a tale

Told by an idiot, full of sound and fury

Signifying nothing. — Macbeth (Act 5, Scene 5, lines 17-28)

 

Accountability is something I struggle with.  I believe it has a much-needed place in our daily lives, but often gets over looked.  Should we be true to our self or accountable to others?  Are they mutually exclusive?  In being true to myself as of late, I realize that I need to be more accountable to others for things.  Which brings me to my latest project. And back to The Biggest Loser for a second.  Since being sick, I have struggled with my weight.  And weekly I became more and more unhappy with the fact that as disgusted with my weight problems as I am, I have no one to blame but myself.  I have avoided the gym, I had given up on “healthy eating”, and I had found every possible excuse to let myself get this way.   I need to be accountable for that if not to myself then to someone I believe can help me.  So I have joined a group of 28 others on this journey.  I officially start Monday, but I am getting myself ready this week.  For the next 8 weeks, I have to answer to 7 other team members’ about what I eat, and how many times I work out, and how hard I work out and yes, even what I weigh.  I need to prove weekly that I am committed to this and to the team.  There are 4 teams pitted against each other, and I need to pull my weight (metaphorically and physically). …And while this is not the televised version, the benefits can only make me feel like a star.

 

So I have chosen to use my accountability for Good instead of Evil…Personal growth instead of Public ridicule…I will keep you all filled in.  And while my blog may appear on Facebook….My weight never will!

 

Go team Black….

 

Enjoy today

 

Carol

@funnycancermom

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CONSUMPTION


What can I say, this is my summer to enjoy.  My children started at sleep away camp 4 summers ago.  Honestly the 1st summer I was to consumed with whether the kids were enjoying/having a good time or not.  The 2nd summer, I had it a little easier — but my sister-in-law had been going through chemo so I  travelled out to help her a few times, so it was not a totally relaxing summer (no complaints though, I was happy to go and help).  Then of course last summer was my turn…and needless to say, 0% relaxation was involved.  Chemo, my Mom, and other family issues made for a summer I never want to repeat (though the kids enjoyed camp).  So when it came time to think about what I wanted from this summer there were a few different scenarios.

1st – I wanted the kids to have a great and stress free summer….With nothing to worry about….CHECK

2nd – I want everyone to be healthy and happy…CHECK CHECK

3rd – I want to relax and do what I want, when I want and how I want….CHECK CHECK CHECK (so far)…but this last has lead to a small issue….

When I was young, I remember hearing stories about relatives (usually my grandparents siblings) had been taken by CONSUMPTION.  It all seemed so common, and I could nt really understand what it was they were talking about.  I gathered what they were saying was that CONSUMPTION could kill – and often did.

We since my children have left, I have consumed massive (yes I mean Massive) quantities of food…I have been eating with abandon (an odd old saying, but seems fitting).  And as I got on the scale this morning…I THOUGHT I WAS GOING TO DIE….FROM CONSUMPTION OBVIOUSLY!!!!

I am back, and I missed writing to you all, I am going out for a walk now (because won’t that take off a good 5 lbs?)  Health and Happiness aside, I really plan on enjoying this summer…but maybe I will get out more and consume less  OR NOT!

ENJOY

Carol

@funnycancermom

 

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The Why Me Factor


Okay, I am an up kind of person…and I usually see the positive in almost every situation.  Today, however, I am taking a different approach…one, which I feel I have earned:  It is the right to the bitch about the small stuff.

A few months ago, I had one of my final surgeries.  While I was under anesthesia, I some how bit down hard on the intubation tube and cracked my front tooth.  “It happens so infrequently”, the anesthesiologist told me, “but it does happen.”  So straight from surgery my friend “SUPER NURSE AMY” drove me straight from surgery to the dentist.  Dr. Lipari was so nice.  He reviewed the mess my mouth was…(this was yet another bit of destruction the radiation from my early bout of cancer had caused…It really has been just the gift that keeps on giving isn’t it?).  Anyway, he was as sweet as he could be…and let me know that I he could fix the tooth, but in all actuality I would probably need an implant.   Yikes I thought, but had really put all that he said on hold…and went on with my day-to-day existence.  That is until yesterday.

I have been on weight watchers for the last 6 weeks, and on Friday I was craving something crunchy.  Trying to be good, I got an apple from the fridge, and took a bit.  The moment I bit in, I knew I had done something wrong.  I knew with this tooth, apples could only be eaten if I cut them into slices.  No direct biting.  Well it was to late.  I felt that I had loosened the tooth.  So I would call him on Monday so that I can go get it re-glued.  I went on with my day, aware that it was loose, but it still was intact.

Anyway Last night we had dinner at Super Nurse Amy’s house.  Amy and I got to enjoy the new H MART grocery store during the day, and then we all met up again for dinner.  Our other friends Elaine and Joe were also with us.  It was a great meal of Crunchy Noodles & Veggies, Panko Crusted Salmon, String Beans and Salad.  YUM (just a little bragging about the food, even though I didn’t cook).  After dinner we all sat around, and I was talking about my tooth being loose and how annoying it was.  Then BAM!  Mid sentence the entire tooth (post and all) fell out of my mouth.  I couldn’t believe it.  It was my front tooth…. so when I smiled you saw, nothing but air…I couldn’t have looked my back woods if I tried.

This morning Amy took me up to Dr. Lipari.  He was so nice.  He actually met me at his office on a Sunday Morning…. How many Dr.’s would do that.  He has put the tooth back in, and re-affirment that an implant is needed….which I will deal with soon.

But after I came home, my friend Meredith asked how I was?  And here is what I have to say to that question. (which I can’t really say but it is how I feel).  Physically I am fine.

Emotionally though, I wish this kind of stuff would stop happening to me.  I know that “this should be the worst that has happened to me” and it definitely isn’t the worst.  But if you put it all together I have had enough of these “I could have been worse” situations.  I don’t wish ill on anyone, but I could use a break from all of this.  A span of “how lucky you are that this has happened to you vs. I am sorry this has happened to you.

I look at the luck my family has had with me getting all these things…I drastically lowers their odds of getting anything.  In a family 1 out of 5 usually gets cancer (between me and my brothers I have covered their odds 2x).

I swear that this filling of being beaten down a little doesn’t last to long.  But I thought you should know that even though I am up/positive 95% of the time.   Even I have my down slides.  And it is perfectly normal.  For you Susie, going through the chemo and having the bad reactions, can make you mad…it is okay and all of those around you have to understand that you are allowed to have moments of anger or depression.  You bounce back….

By the end of me writing this, I already feel better…. but I am okay that I was annoyed for the last 24 hrs.

And I guess that is what is important….It is okay to feel bad, or feel like it isn’t fair, or like you have had enough.  But it is only okay to feel that way for a while…Then realize how lucky you are to be given the gift that you were given….Friends, Family, LIfe, and the time to enjoy them all….

Enjoy Today….

Carol

Funnycancermom

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Pound Foolish


I believe that honesty is the best policy.  If you can’t admit to it, then you know it is wrong.  Well I will admit it…Over the last year I got BIG.  30 lbs bigger than I was before Cancer.  And it really sent me into a tizzy.  I know how silly that sounds that my weight can phase me more than my health.  But it can.  I am the type of individual who cares about my appearance.  Not in the “designer clothes” sense…just in my appearance.  How that appearance is perceived.

It is along the same lines as when I lost my hair.  I gave off the appearance of being “sick”…and even though I had cancer, I never considered myself “sick”.  I may be generalizing, but I believe women feel that Hair and Weight are also personality traits — I mean a bad hair day can alter your personality for the day.  Now, due to the cancer, I won’t have bad hair days anymore.  No, not because I don’t have hair…because I do.  But because the way it grew in is so cute, that I am going to keep it short and silver…A friend called me a Silver Fox the other day,  and I liked it.  So that part of my appearance is in check.

So lets get back to the weighty issue at hand.  Weight.  I am not here to say that I am obese, but I am large for me.  My bones ached constantly from the additional weight they are carrying; I would loose my breathe easily when walking up stairs or exerting myself at a rapid pace.  And my internist and cardiologist confirmed it…(and to think I call these two my friends as well)  — I suffered from DECONDITIONING.  Over-weight and out-of-shape for us laymen!  As he said in the movie NETWORK…”I was mad as hell and I wasn’t going to take it anymore.”  So off to Weight Watchers I went.  That was 6 weeks ago.  I have had good days and bad days on the diet but this morning I got on my scale (not their’s yet cause I wear clothing there…Thank god!)  But on my Scale I reached 169.9 Lbs.  That is down 13 LBs.  13 is my new lucky number.  I have been doing exercise and dieting and it is really making a difference.

I was so happy when I saw that I went right down stairs and had a donut…JUST KIDDING! But I thought about it!  I have 17 Lbs to go before I hit my goal…which honestly was the heaviest I had been in 10 years, but right know that weight will be fine.

So I guess, after my anniversary from surgery was yesterday (if you remember, I had re-named my double Mastectomy day “Erin go Brahless Day”) I  didn’t worry about my weight during treatment (MUCH), but it has weighed heavy on my mind (& body) since…So I see this as another step in my recovery…

I will soon “Tip the Scales of Time” in my favor….and once again will be as “light-hearted” about this issue as I was about my cancer.

Even my puns have gotten a little thin….

Enjoy today!

Carol

Funnycancermom

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I can’t stop this feeling



Yesterday was an extraordinary day for me. Through a friend I was introduced to a women who was recently diagnosed with Breast Cancer. Her diagnosis was different than mine, but none the less she was going to go through many similar situations as I did. During the first few weeks, I could really hear the fear in hear voice…it grabbed me through the phone. It was almost as though I could visualize all of these crazy concepts circling around her head.

I would try to calm her with stories, or anecdotes about my treatment, or my mom’s and even my sister-in-laws..but It was hard. I do remember that the first few weeks after diagnosis everything seem so rush rush…to then have to wait for all the results…It is a massive sensory overload. Think of being tickled, frozen, rained on , pin pricked, and slapped all at the same time. Your mind doesn’t know which sensation to address first.

Anyway, after a few weeks she was calmer (especially knowing that her chance for long term survival was excellent). As chemo began, she unfortunately got several side affects, and then a cold…so she had to stop. Just for 2 weeks (1 cycle) though.

So yesterday, I went down to the city and met her and her friend (the one that had given her my name) so we could sit together at chemo. She is a doll. Funny, and hopeful, and lovely. And it was a great day because she was given really good news that her tumor was really responding will to the medicine (and was shrinking). I watched her crumble a little at the good news (It was a good crumble). Her tears were touching and they wordlessly expressed how much of a relief it was to get that news. SH, I was glad to be with you….

Some may have a concern that I am becoming to emotionally invested in all of these women I talk to. But I say not so. It is basis of what makes me want to start this foundation. I do it to help – that is for sure…BUT I DO IT BECAUSE IT MAKES ME FEEL GOOD! IT MAKES ME FEEL BETTER…not better than anyone, just better about my past. And I don’t want to ever stop feeling better.

I hope everyone has a reason to feel better.

Enjoy today.

Carol

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Stop writing and talk to me


Well I have been talking and talking…scratch that, I have been writing and writing to you for almost a year now.  Wow!  My posts have been read over 11,000 times…and that is pretty cool, as well.  But I thought it was time to put a voice to these words and let you know what I am up to…Luckily enough two unbelievably talented photographer/videographers were interested in my story – so they have created this to help me launch my new Charitable foundation (My Mission and vision is below).  Thank you all for being here with me!!!  You inspire me!

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Blog Mission and Vision

Enjoy today!

Carol

Funnycancermom

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TCMMDI


What can I say.  I got nothin’.  I have actually been ecstatic about it.  Writing this blog is a passion of one, but so is life.  I have not written as often as I used to, and I am finding myself apologizing to a few fervent followers for that…But I am not sorry.  I am just living!

I have finally and officially set up my Charitable Foundation.  Yes, THE CANCER MADE ME DO IT, INC.  is an official charity (501 (c) 3.

THE CANCER MADE ME DO IT

A new 501c3 charitable foundation

And news of a

 Golf/Tennis event to raise funds for Research grants in the following areas:

Breast Cancer, Hodgkin’s/Non-Hodgkin’s Lymphoma, Multiple Myeloma, Head & Neck Cancer (THANC), Leukemia, and Parkinson’s

Some have asked why I chose these ‘diseases, and I that is easy to explain.  While I can switch the “grants” year to year, I wanted to begin with these that have effected my life directly.  Breast Cancer and Hodgkin’s for me, THANC and Parkinson’s for my parents, Multiple Myeloma for my Mother-in-Law, and Leukemia for some very dear friends….How I wish there was no need…but that is just not the case.

So, at the beginning of March I will hold my first meeting to recruit friends , family, neighbors, co-survivors and supporters to help with (what I hope will become) our signature charity event.  A golf/tennis outing – followed by a wine tasting and cocktail party.

I am nervous as Hell!  I am like a scared little girl navigating a playground at a new school on the very first day.  I know I want this to be successful, and I know I want people to want to be involved, but I worry that I can’t pull it off, and that I don’t get the support I need.  And then the whole thing falls apart.

But even with all of this nervous energy…I am going forward with it.  I am Lucky enough Cristie Kerr (#3 Golfer on the PGA Tour) as a “face” of the event.  Pride Family Vineyards – and Curvature Wines as sponsors, I am even in contact with the owners of one of a popular “fashion house”.  SO I think like I handled being sick, I hope to handle this next project…Eyes straight ahead and focussed on the end….reaching my goal and not letting any of the many hurdles I will face slow me down….

Yesterday my Mom told me of a conversation she had with my oldest brother.  She said he was certain that I would be successful at this.  His confidence in me is truly heartwarming and is a real bolster for my nerves.

For now, I am researching these kind of events, and gathering information.  I look forward to any help anyone wants to offer.  Whether it be in knowledge on how to run these events or just interested in being involved.  Or just listening tome talk about it for a while.

I am just glad to talk about it, and spread the word.  Who know’s maybe one day it will be as large as the Michael J. Fox Foundation…Or even better, I look forward to crossing off disease’s as cures are found…Then I can hold a Golf/Tennis event just for the fun of it!

Enjoy the day

Carol

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Who’s that girl in the mirror?


It is rare, if ever, that I have been happy with a photograph of myself. The photo above is the closest I have ever come to being happy about the way I look. Especially after the year I have had! I am thankful for all of the comments and compliments I have been given on it. I have even taken steps to get a copy so that I can have it framed and displayed in my home. Seeing the abundance of great and the flowing rolls at my waist gnaws at me, but overall I am happy with it!

When I see myself in the mirror, I don’t see the same individual who was there before my illness. And while friends and family tell me that what I see is not what they see; I have still felt like the lead in a Hans Christian Anderson story — you know the one about the duck.

Recently, I was introduced to a woman who has just been diagnosed. We have spoken several times over the last few weeks, and her story has touched me. She is further along than I was, and her chemo regime will be more stringent than mine; but I believe she will be fine in the end. I think she sees that now, as well. Her voice today was much calmer and more sure – which was a relief. I was concerned that her fears could become an obstacle for her, and could cloud her capacity to gather the information she needed.

She told me of some good news that she had gotten. Awesome, I thought! Then she wanted to know about my weight gain. She had asked me this several times during our talks. I told her honestly that I have “packed on the pounds (30 to be exact). I know it sounds weird that I gained weight during chemo but I did…Anyway, I know that much of what I said was helpful, but she was still focussed on the weight gain. So here is what I said. “If it is weight gain you want to focus on – you can. But focus on the fact that after you are done with all of your treatments and healthy again…you will have a new project…getting back in shape. Keep thinking about the future and what you need to do. Because no matter how you look at it…you are looking at your future – and that is a good thing. But when you have completed it all (the treatments I mean), don’t waste your time (like I have done) being unhappy with what you see in the mirror.

Because what you see is ALIVE AND WELL..and looking good in a photo or two will happen again!

Enjoy today!

Carol

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That’s Life!


I can’t tell you how happy I am that 2011 is over. I was ready to start fresh. Of course a new year can present with a whole new set of issues…but nothing we can’t handle…

I made some resolutions, like everyone; and I hope to be able to stick with some of them…I want to lose weight, and get in shape, and get a job, clean out my garage, get organized, and I want to enjoy myself, and just continue to be happy and healthy. These are my resolutions — not unusual..I will make an effort to achieve each and every one of them….but I don’t think I will beat myself up if I don’t…Okay maybe I will but That’s Life — and isn’t it grand!

My daughter came home from school yesterday, she has the stomach flu! It really put a crink in my plans for the week. I had a Doctor’s appointment, and a million errands I had to take care of, I wanted to work out, but nothin’ is more important than taking care of her. She is ‘sick’, but it’s the good kind of sick. Sick that goes away in a day or two…and That’s life. And isn’t it grand!

A week ago, I was cooking and I went to grab a dish out of my cabinets. It was on the top shelf of a cupboard by my stove. I grabbed it, but unfortunately didn’t have a good hold on it and it plummeted to the counter — actually on the cooktop stove to be exact. And ‘poof’ cracked 1/2 the stovetop. I beat myself up for a day, because I really was so annoyed with myself…but after a day or two I realized…things could be (and have been) worse, so I refocussed on how to get the problem fixed, and again I realized That’s life! And isn’t it grand!

Tomorrow my dear friend comes in to town for the weekend. Along with her is her daughter (who is my daughters best friend.) They don’t get to see each other often…2 times a year at best — Though FaceTime certainly makes that easier to deal with! We have family plans all weekend, but I have made sure they will at least spend as much time together as they can. Because plans’ don’t always work out..That’s Life, and yes, isn’t it grand!

Life is filled with ups and downs. We get what we want, sometimes, and sometimes we are left empty-handed. We achieve our goals and strive to fulfill our resolutions, and unfortunately, we are not always successful. We dream big and want the best; and along with those hopes we can be disappointed. But take it from me, That’s life, and yes it is grand!

Here is to a Grand New Year!

Enjoy Today!
Carol

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House Cleaning


Holidays are coming. Gifts are being wrapped, and I am making room for the new purchases. I am always surprised at how great it feels after I have finished a good purge. I feel accomplished, I feel organized, and ready to take on anything that comes.

The last few days I have done a different kind of house cleaning. Today I am going for my colonoscopy. So when I talk about cleaning out the house…I referring to my own inner house. An odd thing to write about, but let me assure you I wish I knew more about it before my first one (20 years ago). The preparation is key and really the trick to make this not so bad – and yes, like my chemo, can have some real upsides!

First of all — know your “prep” options. Some gastroenterologists still stick with the old fashioned “go-lightly drink” In my opinion absolutely fowl!!! Another drink is the Magnesium Citrate (just a medical term for YUCHY!) Now I am not saying these two methods aren’t affective,; cause they are! But they also take a toll on your whole body leaving drawn, tired, and generally feeling poorly.

About 10 years ago, I was introduced to a new method – “Visicol Pills” This was a huge improvement. They are horse pill size and you have to take a lot a short time (along with a gallon of water)…but I didn’t have to drink that nasty stuff. Then 3 years I was introduced the Miralax and Gatorade prep. It absolutely does the job, while simultaneously replenishing your electrolytes. You do not get that same draggy, yucky feeling.

Okay and here is the pitch to get your colonoscopy when you are supposed to — Early detection is the #1 defense against colon cancer. And if that doesn’t convince you here is the other reason (and my favorite one)….

Yesterday when I started the “prep” I weighed 7 pounds more than I do today…THATS 2 WEEKS ON WEIGHT WATCHERS!!!!!

So when it is time for you to get your intestinal house cleaned, remember there is a light at the end of the tunnel…or just know you are lighter at the end of the procedure. In my book, either way, a win win! Viva La Purge!

Enjoy today

Carol

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Thanks for the Memories!


I remember the saying “TIME FLIES WHEN YOUR HAVING A GOOD TIME.” I must amend that, because this year has not really been that fun, yet it has flown by.

Last week was my final Surgery; and today my bandages were removed and I am, at last, unencumbered. I am amazed at the speed in which 9 months has past. Yes, it was 9 months ago I was diagnosed with Breast Cancer: During that time I have endured 1 major operation and this past one, 6 months of Chemo Therapy, Hair Loss (even though it wasn’t expected with my chemo protocol), Weight Gain and broken tooth (well that is story I could sink my teeth into). But guess what, I am still Thankful.

I wake up most mornings happy that it is another day. But today I am struck by the fact that it is the holiday season. This is the time that we reflect back on what has happened in the past, and fix what is wrong or focus on what is right in our life. So today I thought I would share some of my reflections with you.

I am thankful for this blog that I created. It has given me a platform to talk and joke about the seemingly non humorous things going on in my life.

Daily I wake up and am Thankful for my dear friends — I am referring to you all as WE JAM. An acronym for your initials. You were there with me through out it all. You laughed with me and you let me cry on your shoulder. When I needed to be propped up you were my support beams. YOU WERE AND ARE MY ROCK(S)!

Since I can’t wish away the disease, I am thankful that I found it as early as I did. I am thankful my friends introduced me to a Doctor who, I believe, made the difference in how my future unfolded. He was (and is for future patients) a blessing.

And as of this morning, I am thankful that I am truly, completely, and totally DONE!!!! While I still have a few more weeks of healing…I have finished the last procedure regarding this disease. (I am facing my colonscopy in December – but that is because I am 50 and not because I HAD cancer – who new age would be a good excuse for something.)

These months haven’t been all uplifting. Their have been events that have altered my immediate world. Getting Breast Cancer has altered the way I look at things. I am not as lenient towards everything, and I am no longer willing to just sit idly by. If I feel I am being treated unfairly or treated harshly I will not stay quiet. I have faced cancer twice, and if I have been able to stand up to that — so, you better believe I am going to stand up to anyone or anything that tries to make me feel that I am undeserving.

So tomorrow I wake up, the day before the holiday season officially starts, chin up, as the chemo over, newly coiffed, CANCER FREE CAROL….who thinks the last year just flew by like the blink of an eye. AND I AM THANKFUL IT DID!!!!

Scott and I

HAPPY HOLIDAYS TO ALL!

ENJOY AND BE THANKFUL

CAROL

@funnycancermom

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A River in Egypt!


This weekend, we had an unexpected and unprecedented October storm. It caused untold damage on houses and power lines. Hundred’s of thousands we’re without power. Mother Nature came to remind use of the kind of power she has. Driving down the streets you now see piles and piles of downed tree limbs. These help us remember what happened — and these signs of damage are hard to avoid. Sometimes the damage isn’t always so visible.

How is it really possible to avoid a brick wall when you are traveling straight for it at 90 miles an hour? Well. you can pretend it isn’t there…or at least that is what I do. Lately a heap of praise has been showered upon me…and please believe me I am truly humbled by it. Many have told me how brave I have been through this whole ordeal. And in spending sometime reflecting on my past six months, I wonder if my supposed brevity isn’t just a fancy form of denial.

Today I was asked if I remembered how I felt when I was in college — when I was diagnosed and how I felt being there without any family (and. yes, even friends). My answer, “I don’t remember. Face it I was a 20 year old college kids. I am sure I thought I was invincible – even if the Dr.’s showed concern. I guess i was just a dumb kid. Certain things I remember, like the day I lost my hair! But those memories are few and far between.” But this can’t be true, because every time the subject comes up all I want to do is move on to another subject.

Then I was asked how I felt about this last diagnosis, “now that it is in the past.” The answer is very similar (obviously not the part about being young). I don’t remember much. I remember how certain events surrounding my diagnosis and treatment made me feel, but nothing really, in depth, about the actual treatment and diagnosis itself. Again I can remember events related to certain days and treatments. For example, I can remember agonizing for a week on how to tell my friends. Poor Elaine got the good news first. I hated having to tell her first, for so many reasons, but I needed her help (not easy for me to admit). Then I told my parents. I remember how upset I was for my parents to have to hear the news, because they had already been through enough. I felt bad that I had to tell my brother’s — and made them be with me when I told my parents. I spent much time worrying about how everyone else would handle it, that I was able to avoid worrying about how I would handle this. And if I didn’t think about it, each day would just ‘happen’ and I wouldn’t have to face the “Hail storm” that I was living through. But it seems this unexpected winter storm has somehow unearthed some ground shaking feelings with in me – feelings I am having trouble avoiding.

Now that I am done, I am trying to get a handle on what I have just been through; and it is proving to be overwhelming at times. I can sometimes feel like my body and psyche has just been hit with an unexpected October Storm. I keep hearing that old saying…”You have to take the good with the bad.” Well I am here to state that I am pretty full up of bad, SO BRING ON THE GOOD.”

I am not turning to the dark side. No I am not becoming a Debbie Downer. Not me! But the truth is…even the strongest of us, and even those of us that are always there for others with a “stiff upper lip” can just accept what has happened. I just can’t avoid it anymore, because it takes to much energy avoiding the facts – I accept them and I’LL DEAL WITH THEM.

So Denial is, once again, a river in Egypt.

Enjoy the day!

Carol

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Defense Strategies


I know that I have not written in a week or two. I admit that I am a little defensive about it as well. I have grown to love writing. Which is somewhat of a shock — and any of you that know me from high school will agree. See I was not the student (actually I was a student with Dyslexia), and anything to do with Reading and Writing usually sent me into a seemingly never-ending state of frustration and misery. Honestly, I don’t really think I learned how to read and write until 6th grade. But what I lacked in reading and writing ability — I certainly made up or with my ability to emote.

As my twins have become tweens, I am reminded (constantly) that all teenagers and young adults are passionate about their beliefs and feelings. And that these beliefs stated about everything and anything: From how much one hates vegatables to how much she loves the male lead in the new movie “FOOTLOOSE.” As with my childhood, if they are was happy they exude was a kind of euphoria, and if they are sad they would sob about how it is the worst day ever. As a child with a disability, I gave my emotions everything (as do my kids). It was my release or my way of telling everyone how I was doing. After years of tutors, and just trying to catch up, I think I finally did. And now, as you all read, I use my words to emote; well not totally true, my kids say I am still a yeller at times – but that is just motherhood I think. Who wouldn’t yell when the kids decide to take their new clothes roll and crumple them into a ball. Then shove them in their closets because “it saves room and I can fit more stuff in there…like my football and basketball!…REALLY! OOPS, sorry their I go emoting again.

Back to my original point, family and friends have asked “why are you not writing anymore”….and I am still writing – it was just a 1 1/2 week hiatus. In that time I was asked to broaden my scope a little, and write an article for a local paper. I know I sound a little defensive about my writing, and that is because I am. I am not sure how you will all feel about it now, that I am “cancer free”. Up until know I have been able to relate everything back to my experience with cancer and chemo. Which I still want to do; but I also want to talk about other things now. Frankly, some of these things are brought on by the fact that I am a 2x cancer survivor – but some of these things are just part of everyday normal life. And my quandry relates to the fact that the blog is titled “The Cancer Made Me Do It” and that I am the @Funnycancermom. So can I talk about anything I want to? Can I be just a funny mom who had cancer- twice? Well we will see, cause the blog will go on!

If you still continue to like it it is because I am good at expressing myself…but if you don’t just remember….THE CANCER MADE ME DO IT!

ENJOY TODAY!

Carol
@funnycancermom

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Ahead of the Curve


I don’t know if it is just me, but I have begun to notice an onslaught of “cancer articles” or press about amazing “cancer stories” lately. Last weeks NY Times Style section highlighted a woman and her fight against breast cancer. A few weeks ago the NY Times magazine cover was about a the woman who wrote “Crazy, Sexy, Cancer.” A few months ago, the NY Times also had an on cancer “etiquette” (What to say and what not to say to someone who has been diagnosed with cancer). I think the focus is both wonderful and disturbing on several levels.

This increase in public awareness is wonderful because it brings constant attention to a disease that, I believe, will one day have a cure – and not just for one kind of cancer but for all kinds. I mean who doesn’t know someone who hasn’t had, or has some “strain”. It is just a little scary to think how large a grasp this disease has on the world. And with October being Breast Cancer Awareness month, there have been a glut of publicity from various News outlets. I believe keeping a constant focus on raising funds for cancer research is hugely important, but I worry, a little, that all of this press may dull the “enormity” of the situation. I feel many of begun to say. “It’s too much already.” And because the focus of most of the publicity is about “celebrities or well connected individuals” – many just seem to ignore it. It seems that the press has forgotten about the “commoners”: The ones who are out there fighting the fight everyday; you know those that don’t have insurance, or don’t have help, or don’t staff to bring them to and from treatments. You know, “We The People” – not them – the “famous”!

I have written about “me and we” for the last several months. And I am glad to say that my message (about me and we the people) seems to be ahead of the curve when it comes to what’s hot in “cancer talk” versus what’s not! In May I wrote about “cancer etiquette” (1 month prior to the NY times article piece; and 2 weeks ago I wrote about the Rivertowns response to Breast Cancer Awareness Month…www.riverjournalonline.com/villages/irvington/2047-whats-all-the-pink-about) – while the NY Times article came out today about NY’s response to Breast Cancer Awareness month. I have to say that I would have hoped that the national and international press would focus more on the “lesser known individual stories.” Stories like the ones that The Enterprise and The River Journal have highlighted. The local hereos and fighters. Because everyday is a struggle for them, and yet these people never stop believing in the positive and the hope. They do it all with out staff or without pomp and circumstance. They are also ahead of the curve, because they are and experiencing what everyone else is reading about.

So like our heroes in the armed services, these other everyday “we the people” should be congratulated and commended for keeping up the fight and forging ahead, facing adversity with a smile and doing something to help make the world safer…a place where the only cancer around is that of the Astrological Sign. That is what the press should be writing about- and I hope this blog is ahead of the curve again….let all the other press follow along….

Enjoy today

Carol
@funnycancermom

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The Day of Atonement


In the Jewish tradition, the day of Atonement is one of the most holy days of the year. This is the day to admit to your wrong doings of the year, and apologizing for it will clean ones soul for the next year. Well I don’t have to tell you about the year I have had. And I think few would disagree with me when I say that I feel I have done my penance….But as I sit and ponder this past year, I feel that maybe in my haste, I may not have repented for some things that I have done. So I feel it is time for me to come clean….and tell the truth, and deal with the consequences of my actions.

As hard as I tried I couldn’t help myself. It all started when chemo started. I have often blamed the drugs for my straying off the path of righteousness. When I am alone in the morning I often regret my actions from the day before…But I can not seem to help myself. I try as hard as I can, and even today I have asked for; nee prayed for the will to make it right. It has been so difficult to come clean but even I know that I must, so here it goes.

It was me who ate the cookie from the cookie jar, yes me — couldn’t be you say — but on Tuesday I went for the ultimate in lie detector tests….WEIGHT WATCHERS, and they agree — It was me who stole all of the cookies, the cakes, and the ice creams from the cookie jar. And I am truly repenting for it – though I am telling you it was really tasty!

Enjoy today!

Carol
@funnycancermom

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HEY


Thursday was one of those days that keeps you wondering about for a long time – especially if you have girls. My daughter and I were sitting around enjoying an afternoon together. She got a text and began to respond feverishly. “Is everything okay?” I asked. “MOOOOMMM!” she responded with the roll of her eyes and the genuflecting of her head, and I quickly realized that my daughter was gone and another child had taken her place. To all you Mom’s of girls out there, when did SYBIL become the characteristics of a “teenage” girl? I am amazed at the speed of which this transformation happens – it is truly supernatural.

Now I have seen bits and pieces of this coming for a while; and Yes, my friends have warned me of this plague…but REALLY, she just turned 12 on Wednesday…couldn’t I get a little break – you know like a week!. I guess I can see the omnipotent’s point. I mean I am cancer free, my hair seems to be growing back, my husband is still being especially nice, my primetime shows are back from summer hiatus – but REALLY couldn’t he pick a different kind of “hurdle to jump over next – something a little easier?

My daughter really is one of the sweetest girls you will ever meet, so when she flips to the Dark side, it really is shocking. So I have begun to formulate responses that could possibly bring my daughter back quicker. If only I could pull my hair out, but I barely have any yet to do that to. I could I just break down and beg for her to return – but nay I say – that can only show weakness. I could ignore it, but face it – where is the fun in that. I mean if I have to last through this time in her life, I might as well have a little fun – right? So that leaves me with my plan of action…Embarrassment. I think if the girl I birthed decides to switch into someone I am not familiar with, maybe I can make it so this other persona doesn’t want to appear anymore.

Today I plan to try it out. If SYBIL appears, I am going to hold her hand, and ask her to “skip to the loo” with me, and I am going to text her every minute to impart on her that most meaningful words of the TEXT world “I:)”. Maybe even wear short shorts and a tank top (Well I think that is just universally cruel so probably not that). And in the end I believe she will be annoyed enough that to make my daughter respond to me and not her evil other self…I hope!

And BTW (i just learned this means by the way) the text that started it all was from a friend who screamed ….”HEY” in a text – I mean the nerve of her friend to write that!!!

Smile and enjoy todya…

I think I will

Carol

@funnycancermom

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MORE OR LESS


Wow! Here I am “2 weeks post cancer treatment”, and I feel like it never happened. Well MORE or LESS it is true. I remain firm with the belief that this is in my past, and I have a long future ahead of me. So I am “MORE or LESS” back to normal….or am I.

I find myself a little MORE skittish about things. My friends are being nice (but I bet it will begin to drive them a little crazy). I am LESS inclined to be a passenger in a car. I have become that person that uses the invisible brake on the passenger side floor. The invisible pedal that annoys the driver (this is my way of apologizing for being so annoying – I get it). For some reason I have become very nervous. I assume it is a control issue. I had no control in getting cancer…so I am looking I am naturally looking to take control of what I can. I would think this feeling will calm down in a little bit (I hope).

I find I am MORE likely to decline Dinner or “Evening Out” opportunities (mostly because I still seem to fall asleep before 9:00), and LESS likely to veer far from my children (something they are finding particularly annoying).

I am MORE introspective and philosophical (as my brother says), and LESS caring about my appearance. I definitely need to re evaluate this second part because, while their is so much MORE of me to love I would prefer the adoration be LESS Body mass related and MORE Personality related. Face if the MORE LBS.on the scale translates to LESS clothes that fit the body. And I am particularly fond of clothing, so I think it prudent to stay in a weight class that I can be comfortable in them.

I find I am MORE interested in getting my life organized, but have LESS focus to actually accomplish that task — at the moment. I can sit and try to go through a pile of papers and an hour later, still get nowhere…It is somewhat frustrating. The upside of this is that now I have at least been giving myself an A+ for the effort.

I think, I just want MORE of my old life back, and I am LESS willing to wait for it. I am trying to make it happen now. So bare with me a little bit. Because it is MORE likely than not, that I have changed, and LESS likely that I will be the same woman I was before.

So I hope that the new me is okay or even better — MORE or LESS!

Enjoy

Carol
@funnycancermom

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