Tag Archives: a day in the life of a cancer mom

Maturation


Yesterday was visiting day at my children’s camp. This is year number 4. I can tell you the difference between them this year and the years before was huge. Their whole demeanor was one of ease, and happiness and contentment. It was just so wonderful to be with them.

Frankly, in years past, In years past, I always enjoyed seeing them, but the day had a different feeling. The first hour was usually calming one of my kids down from the anxiety of us arriving. I mean talk about a bull in a china shop…We parents storm the camp much like they stormed the beach at Normandy all those years ago. We throw our stuff down, reserve our space for the day and then go charging to the bunks. (This does present a problem with twins, because my husband still haste part the car…but we work it out every year). I watch as parents push kids out of the way just so they can get to their won kids 1 or 2 seconds earlier than the next mom. I think Sasha Baron Cohen would have a field day using “visiting day” in one of his satires.

Anyway, even though visiting day was from 10-4…The 1st hour was getting the kids calm and the last 2 hours were spent calming them down for when we left… But this year my kids were totally different. More relaxed, more self assured, more, “go with the flow of the day”…and for the 1st time I have to say…Visiting Day wasn’t long enough. We talked and played and roamed around. It was just nice. and I thought why this could be?

Yes my children are getting older, and that is a big part of it. But I realized, they had “no worries” this year. As much of a relaxing summer it is for me, it is for my kids as well. Last year I had given Alissa’s bunk “THE CANCER MADE ME DO IT” bracelets.When I arrived this year many of the girls were still wearing them…which was lovely . Many told me how happy they were that all was okay now.

Later I ran into an old friend (really an old Boss…but he was a really good boss so I considered him both). And he new about my year last year, and asked me about the blog and about the foundation. I was touched that he knew all theta was going on. Throughout the day I ran into women who are parents of campers who asked about the blog and the foundation…and they were also followers…also very cool. Later the kids and I were sitting and talking. I mentioned how nice it was that people asked how I was doing…my son Matt said something that struck me to the core.

Mom we told everyone last year how hard you tried to make things seem okay…This year you are okay and things are easier…Their are other kids in camp who has someone in their family going through cancer now…and a few have come to us and asked questions. I tell them what you always told us…There are some bad days but mostly the days are really okay…and honestly, have family and friends who love me…makes everything sealable….

He said it in such a way that I was stunned at how grown-up he sounded. I was so proud to hear them talk about it this way…At the end of the day, the good-byes were tearless, but still warm and loving…They both were glad for the day, and look forward to coming home in 4 weeks. But are filled with happiness to stay at camp and “play” with their friends for 4 weeks. They are in a great place, and spend their days laughing and loving life…and this year not fearing what is going on with their Mommy.

Cancer is a disease that does more damage than you can imagine. Their are many, many great charities that are working hard to find a cure…It is the day to day issues that I chose to focus on though…the family, the kids and how it affects them is what made me want start this foundation. We can help each other get through it…Cancer is still a growing problem. My illness made my kids mature a little quicker than they might have (and trust me this is only in certain areas…I still can’t get hem to make a bed or clean a room). But all in all, Maturation is good.

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Building on the Foundation


Today was going to be a busy day for me.  I had Blood tests and Dr.’s appointments…All pre-scheduled check-ups.  Or Check-ins on my “post-cancer” progress.  It makes it asier for me to think about all of this in the “post” sense…because I view it as something from Way Way back in my past (even though today, ironically, is 1 year since my first Chemo treatment).   As I thought about my past, for some resin I became very nostalgic.  In between my appointments (I mean that both chronologically and geographically) I made a stop at the house that I grew up in.

While driving up the hills that lead to my street, I felt eerily at home…like I had never left.  (Truthfully, the last time I did live there I also had cancer, so I wasn’t totally off base).  The house has been altered…I know that from friends who used to live on one side of us (and whose house was totally redone by new owners).  But with regard to my house, they seem to have left the appearance of the front alone. I understand that the pushed out from the back of the house.  And seeing it today I understand why.  The house “shows well”.  It has good bones….The foundations are solid, so from that you can build or add on.

That is kind of like me…From the outside I “show well”.  You wouldn’t really pick me as the one to get cancer twice.  But like my house, I have a good foundation.  The Dr.’s have always said I was in great health for someone who is ailing.  And that good, solid foundation has served me well.  In my father’s case he, too, has a great foundation. …Unfortunately for someone with advanced parkinson’s that can be both a blessing and a curse.

Foundations are important.  As I work to start my charitable foundation, I have come to realize how important it is to make  sure it has the strong “sub structure” to give it staying power.  To enable it to always “show well” and promise to help others who didn’t have the support structure I have had.  I hope this foundation can stand the test of time, while it keeps up wit the needs of the times…

Foundations are important, because with out them our world has nothing solid to lean on.

Have a great day!

ENJOY

Carol

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Stop writing and talk to me


Well I have been talking and talking…scratch that, I have been writing and writing to you for almost a year now.  Wow!  My posts have been read over 11,000 times…and that is pretty cool, as well.  But I thought it was time to put a voice to these words and let you know what I am up to…Luckily enough two unbelievably talented photographer/videographers were interested in my story – so they have created this to help me launch my new Charitable foundation (My Mission and vision is below).  Thank you all for being here with me!!!  You inspire me!

Blog Mission and Vision

Enjoy today!

Carol

Funnycancermom

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Tomorrow


Since Saturday I have had a stomach bug, a colonoscopy, my son got the stomach bug and I lost my voice…and yet I am certain tomorrow will be a better day…

Come to think of it, my last five years have been pretty much like the last week, and I still believe that tomorrow will be bright…go figure! Today I realized that the holiday season hasn’t been particularly good to my family or friends over the past 5 years, and yet I still believe that tomorrow will be a better day….

I was talking with someone this morning and my friend Sharon came up. Sharon was a glowing, beautiful woman who was truly happiest outside in her garden, on a beautiful day, toiling the soil, playing with her dog, and chit chatting with her family, her husband (her true soul mate- Steven) her friends and our kids. She always said a perfect life would be owning a flower shop and bringing her dog to work everyday. Nothing ever really dampened her joyous, sparkling, warming and loving personality…That is until the cancer did almost 5 New Years Eve’s ago. Our circle was devastated – and my children even more so, for they had lost a true “angel” in their life. So with every ounce of strength I could muster for my children and my husband, for Sharon’s husband and children, I picked myself up and once again believed that tomorrow will be a better day….

Steven, a therapist, had truly lost his partner. I love my husband and I know some unbelievably wonderful couples — but these two were in a class of their own. They were truly each others better half. Steven’s sense of humor began to come back about 6 months after her death. Little drips and bits would emerge. My husband was overjoyed, because even though he has lots of friends, he had no one as close to him as Steven. Steven became the 5th member of our family. Not a meal was eaten without him seating in his seat next to my daughter. His daughter, Lauren, also got to join in in whenever she wanted. Once again, we were a happy crew. We were back to our regular crew dinners with Wendy and Doug and the boys…so light once again began stream through…that is until cancer took Steven Almost 3 January’s ago.

SHARON

STEVIE


And once again, I thought my children and my husband must believe that happiness is always possible (pretty much because I believe it to be true), so I strapped that smile on and went about the business of helping them get through it all. Laughter, happiness and joy had returned to my kids, and my husband (thought he still struggles with that from time to time). I would often wonder where I got this attitude from…and that would be my mother. She always believed in a brighter outcome. Especially in October of 2010 when she went to the dentist for, what she thought was and absess in her tooth. That day, a long one, yielded us with the diagnosis of Mouth Cancer. And on December 13th, 2010 she underwent surgery to remove a small portion of her jaw and right hard palate. But as luck with have it…having 2 people with positive attitudes is double the boost…and with nary a complaint or bad day we finished out another holiday season believing that tomorrow will be a better day…

All of you know my story…Since I was diagnosed on Valentines day 2012, I consider this year a good one. My Mom and myself enter the 2011 Holiday season healthy and happy. Happy because I refuse to think of it any other way. Steven and Sharon would be annoyed at me for being any other way. My children would not benefit from me being any other way, and my husband would not want me to be any other way.

I realized I started thinking about all of this stuff today because, as I nurse my voice back to health, I prepare to be a guest on Paul Fiener’s radio show tomorrow (12/9/2012 FROM 10 A.M. TO 10:30) on WVOX – 1460 on your AM dial (or streamed live on your computer at http://www.WVOX.com). And I realized what it is I wanted to talk about…because even though I was invited to talk about my blog and it’s future. …As we enter the Holiday season again, I just want everyone to know that TOMORROW WILL BE A BETTER DAY!!!

ENJOY AND LISTEN IF YOU CAN!

All the best,

Carol

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House Cleaning


Holidays are coming. Gifts are being wrapped, and I am making room for the new purchases. I am always surprised at how great it feels after I have finished a good purge. I feel accomplished, I feel organized, and ready to take on anything that comes.

The last few days I have done a different kind of house cleaning. Today I am going for my colonoscopy. So when I talk about cleaning out the house…I referring to my own inner house. An odd thing to write about, but let me assure you I wish I knew more about it before my first one (20 years ago). The preparation is key and really the trick to make this not so bad – and yes, like my chemo, can have some real upsides!

First of all — know your “prep” options. Some gastroenterologists still stick with the old fashioned “go-lightly drink” In my opinion absolutely fowl!!! Another drink is the Magnesium Citrate (just a medical term for YUCHY!) Now I am not saying these two methods aren’t affective,; cause they are! But they also take a toll on your whole body leaving drawn, tired, and generally feeling poorly.

About 10 years ago, I was introduced to a new method – “Visicol Pills” This was a huge improvement. They are horse pill size and you have to take a lot a short time (along with a gallon of water)…but I didn’t have to drink that nasty stuff. Then 3 years I was introduced the Miralax and Gatorade prep. It absolutely does the job, while simultaneously replenishing your electrolytes. You do not get that same draggy, yucky feeling.

Okay and here is the pitch to get your colonoscopy when you are supposed to — Early detection is the #1 defense against colon cancer. And if that doesn’t convince you here is the other reason (and my favorite one)….

Yesterday when I started the “prep” I weighed 7 pounds more than I do today…THATS 2 WEEKS ON WEIGHT WATCHERS!!!!!

So when it is time for you to get your intestinal house cleaned, remember there is a light at the end of the tunnel…or just know you are lighter at the end of the procedure. In my book, either way, a win win! Viva La Purge!

Enjoy today

Carol

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Thanks for the Memories!


I remember the saying “TIME FLIES WHEN YOUR HAVING A GOOD TIME.” I must amend that, because this year has not really been that fun, yet it has flown by.

Last week was my final Surgery; and today my bandages were removed and I am, at last, unencumbered. I am amazed at the speed in which 9 months has past. Yes, it was 9 months ago I was diagnosed with Breast Cancer: During that time I have endured 1 major operation and this past one, 6 months of Chemo Therapy, Hair Loss (even though it wasn’t expected with my chemo protocol), Weight Gain and broken tooth (well that is story I could sink my teeth into). But guess what, I am still Thankful.

I wake up most mornings happy that it is another day. But today I am struck by the fact that it is the holiday season. This is the time that we reflect back on what has happened in the past, and fix what is wrong or focus on what is right in our life. So today I thought I would share some of my reflections with you.

I am thankful for this blog that I created. It has given me a platform to talk and joke about the seemingly non humorous things going on in my life.

Daily I wake up and am Thankful for my dear friends — I am referring to you all as WE JAM. An acronym for your initials. You were there with me through out it all. You laughed with me and you let me cry on your shoulder. When I needed to be propped up you were my support beams. YOU WERE AND ARE MY ROCK(S)!

Since I can’t wish away the disease, I am thankful that I found it as early as I did. I am thankful my friends introduced me to a Doctor who, I believe, made the difference in how my future unfolded. He was (and is for future patients) a blessing.

And as of this morning, I am thankful that I am truly, completely, and totally DONE!!!! While I still have a few more weeks of healing…I have finished the last procedure regarding this disease. (I am facing my colonscopy in December – but that is because I am 50 and not because I HAD cancer – who new age would be a good excuse for something.)

These months haven’t been all uplifting. Their have been events that have altered my immediate world. Getting Breast Cancer has altered the way I look at things. I am not as lenient towards everything, and I am no longer willing to just sit idly by. If I feel I am being treated unfairly or treated harshly I will not stay quiet. I have faced cancer twice, and if I have been able to stand up to that — so, you better believe I am going to stand up to anyone or anything that tries to make me feel that I am undeserving.

So tomorrow I wake up, the day before the holiday season officially starts, chin up, as the chemo over, newly coiffed, CANCER FREE CAROL….who thinks the last year just flew by like the blink of an eye. AND I AM THANKFUL IT DID!!!!

Scott and I

HAPPY HOLIDAYS TO ALL!

ENJOY AND BE THANKFUL

CAROL

@funnycancermom

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A River in Egypt!


This weekend, we had an unexpected and unprecedented October storm. It caused untold damage on houses and power lines. Hundred’s of thousands we’re without power. Mother Nature came to remind use of the kind of power she has. Driving down the streets you now see piles and piles of downed tree limbs. These help us remember what happened — and these signs of damage are hard to avoid. Sometimes the damage isn’t always so visible.

How is it really possible to avoid a brick wall when you are traveling straight for it at 90 miles an hour? Well. you can pretend it isn’t there…or at least that is what I do. Lately a heap of praise has been showered upon me…and please believe me I am truly humbled by it. Many have told me how brave I have been through this whole ordeal. And in spending sometime reflecting on my past six months, I wonder if my supposed brevity isn’t just a fancy form of denial.

Today I was asked if I remembered how I felt when I was in college — when I was diagnosed and how I felt being there without any family (and. yes, even friends). My answer, “I don’t remember. Face it I was a 20 year old college kids. I am sure I thought I was invincible – even if the Dr.’s showed concern. I guess i was just a dumb kid. Certain things I remember, like the day I lost my hair! But those memories are few and far between.” But this can’t be true, because every time the subject comes up all I want to do is move on to another subject.

Then I was asked how I felt about this last diagnosis, “now that it is in the past.” The answer is very similar (obviously not the part about being young). I don’t remember much. I remember how certain events surrounding my diagnosis and treatment made me feel, but nothing really, in depth, about the actual treatment and diagnosis itself. Again I can remember events related to certain days and treatments. For example, I can remember agonizing for a week on how to tell my friends. Poor Elaine got the good news first. I hated having to tell her first, for so many reasons, but I needed her help (not easy for me to admit). Then I told my parents. I remember how upset I was for my parents to have to hear the news, because they had already been through enough. I felt bad that I had to tell my brother’s — and made them be with me when I told my parents. I spent much time worrying about how everyone else would handle it, that I was able to avoid worrying about how I would handle this. And if I didn’t think about it, each day would just ‘happen’ and I wouldn’t have to face the “Hail storm” that I was living through. But it seems this unexpected winter storm has somehow unearthed some ground shaking feelings with in me – feelings I am having trouble avoiding.

Now that I am done, I am trying to get a handle on what I have just been through; and it is proving to be overwhelming at times. I can sometimes feel like my body and psyche has just been hit with an unexpected October Storm. I keep hearing that old saying…”You have to take the good with the bad.” Well I am here to state that I am pretty full up of bad, SO BRING ON THE GOOD.”

I am not turning to the dark side. No I am not becoming a Debbie Downer. Not me! But the truth is…even the strongest of us, and even those of us that are always there for others with a “stiff upper lip” can just accept what has happened. I just can’t avoid it anymore, because it takes to much energy avoiding the facts – I accept them and I’LL DEAL WITH THEM.

So Denial is, once again, a river in Egypt.

Enjoy the day!

Carol

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Defense Strategies


I know that I have not written in a week or two. I admit that I am a little defensive about it as well. I have grown to love writing. Which is somewhat of a shock — and any of you that know me from high school will agree. See I was not the student (actually I was a student with Dyslexia), and anything to do with Reading and Writing usually sent me into a seemingly never-ending state of frustration and misery. Honestly, I don’t really think I learned how to read and write until 6th grade. But what I lacked in reading and writing ability — I certainly made up or with my ability to emote.

As my twins have become tweens, I am reminded (constantly) that all teenagers and young adults are passionate about their beliefs and feelings. And that these beliefs stated about everything and anything: From how much one hates vegatables to how much she loves the male lead in the new movie “FOOTLOOSE.” As with my childhood, if they are was happy they exude was a kind of euphoria, and if they are sad they would sob about how it is the worst day ever. As a child with a disability, I gave my emotions everything (as do my kids). It was my release or my way of telling everyone how I was doing. After years of tutors, and just trying to catch up, I think I finally did. And now, as you all read, I use my words to emote; well not totally true, my kids say I am still a yeller at times – but that is just motherhood I think. Who wouldn’t yell when the kids decide to take their new clothes roll and crumple them into a ball. Then shove them in their closets because “it saves room and I can fit more stuff in there…like my football and basketball!…REALLY! OOPS, sorry their I go emoting again.

Back to my original point, family and friends have asked “why are you not writing anymore”….and I am still writing – it was just a 1 1/2 week hiatus. In that time I was asked to broaden my scope a little, and write an article for a local paper. I know I sound a little defensive about my writing, and that is because I am. I am not sure how you will all feel about it now, that I am “cancer free”. Up until know I have been able to relate everything back to my experience with cancer and chemo. Which I still want to do; but I also want to talk about other things now. Frankly, some of these things are brought on by the fact that I am a 2x cancer survivor – but some of these things are just part of everyday normal life. And my quandry relates to the fact that the blog is titled “The Cancer Made Me Do It” and that I am the @Funnycancermom. So can I talk about anything I want to? Can I be just a funny mom who had cancer- twice? Well we will see, cause the blog will go on!

If you still continue to like it it is because I am good at expressing myself…but if you don’t just remember….THE CANCER MADE ME DO IT!

ENJOY TODAY!

Carol
@funnycancermom

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Ahead of the Curve


I don’t know if it is just me, but I have begun to notice an onslaught of “cancer articles” or press about amazing “cancer stories” lately. Last weeks NY Times Style section highlighted a woman and her fight against breast cancer. A few weeks ago the NY Times magazine cover was about a the woman who wrote “Crazy, Sexy, Cancer.” A few months ago, the NY Times also had an on cancer “etiquette” (What to say and what not to say to someone who has been diagnosed with cancer). I think the focus is both wonderful and disturbing on several levels.

This increase in public awareness is wonderful because it brings constant attention to a disease that, I believe, will one day have a cure – and not just for one kind of cancer but for all kinds. I mean who doesn’t know someone who hasn’t had, or has some “strain”. It is just a little scary to think how large a grasp this disease has on the world. And with October being Breast Cancer Awareness month, there have been a glut of publicity from various News outlets. I believe keeping a constant focus on raising funds for cancer research is hugely important, but I worry, a little, that all of this press may dull the “enormity” of the situation. I feel many of begun to say. “It’s too much already.” And because the focus of most of the publicity is about “celebrities or well connected individuals” – many just seem to ignore it. It seems that the press has forgotten about the “commoners”: The ones who are out there fighting the fight everyday; you know those that don’t have insurance, or don’t have help, or don’t staff to bring them to and from treatments. You know, “We The People” – not them – the “famous”!

I have written about “me and we” for the last several months. And I am glad to say that my message (about me and we the people) seems to be ahead of the curve when it comes to what’s hot in “cancer talk” versus what’s not! In May I wrote about “cancer etiquette” (1 month prior to the NY times article piece; and 2 weeks ago I wrote about the Rivertowns response to Breast Cancer Awareness Month…www.riverjournalonline.com/villages/irvington/2047-whats-all-the-pink-about) – while the NY Times article came out today about NY’s response to Breast Cancer Awareness month. I have to say that I would have hoped that the national and international press would focus more on the “lesser known individual stories.” Stories like the ones that The Enterprise and The River Journal have highlighted. The local hereos and fighters. Because everyday is a struggle for them, and yet these people never stop believing in the positive and the hope. They do it all with out staff or without pomp and circumstance. They are also ahead of the curve, because they are and experiencing what everyone else is reading about.

So like our heroes in the armed services, these other everyday “we the people” should be congratulated and commended for keeping up the fight and forging ahead, facing adversity with a smile and doing something to help make the world safer…a place where the only cancer around is that of the Astrological Sign. That is what the press should be writing about- and I hope this blog is ahead of the curve again….let all the other press follow along….

Enjoy today

Carol
@funnycancermom

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HEY


Thursday was one of those days that keeps you wondering about for a long time – especially if you have girls. My daughter and I were sitting around enjoying an afternoon together. She got a text and began to respond feverishly. “Is everything okay?” I asked. “MOOOOMMM!” she responded with the roll of her eyes and the genuflecting of her head, and I quickly realized that my daughter was gone and another child had taken her place. To all you Mom’s of girls out there, when did SYBIL become the characteristics of a “teenage” girl? I am amazed at the speed of which this transformation happens – it is truly supernatural.

Now I have seen bits and pieces of this coming for a while; and Yes, my friends have warned me of this plague…but REALLY, she just turned 12 on Wednesday…couldn’t I get a little break – you know like a week!. I guess I can see the omnipotent’s point. I mean I am cancer free, my hair seems to be growing back, my husband is still being especially nice, my primetime shows are back from summer hiatus – but REALLY couldn’t he pick a different kind of “hurdle to jump over next – something a little easier?

My daughter really is one of the sweetest girls you will ever meet, so when she flips to the Dark side, it really is shocking. So I have begun to formulate responses that could possibly bring my daughter back quicker. If only I could pull my hair out, but I barely have any yet to do that to. I could I just break down and beg for her to return – but nay I say – that can only show weakness. I could ignore it, but face it – where is the fun in that. I mean if I have to last through this time in her life, I might as well have a little fun – right? So that leaves me with my plan of action…Embarrassment. I think if the girl I birthed decides to switch into someone I am not familiar with, maybe I can make it so this other persona doesn’t want to appear anymore.

Today I plan to try it out. If SYBIL appears, I am going to hold her hand, and ask her to “skip to the loo” with me, and I am going to text her every minute to impart on her that most meaningful words of the TEXT world “I:)”. Maybe even wear short shorts and a tank top (Well I think that is just universally cruel so probably not that). And in the end I believe she will be annoyed enough that to make my daughter respond to me and not her evil other self…I hope!

And BTW (i just learned this means by the way) the text that started it all was from a friend who screamed ….”HEY” in a text – I mean the nerve of her friend to write that!!!

Smile and enjoy todya…

I think I will

Carol

@funnycancermom

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MORE OR LESS


Wow! Here I am “2 weeks post cancer treatment”, and I feel like it never happened. Well MORE or LESS it is true. I remain firm with the belief that this is in my past, and I have a long future ahead of me. So I am “MORE or LESS” back to normal….or am I.

I find myself a little MORE skittish about things. My friends are being nice (but I bet it will begin to drive them a little crazy). I am LESS inclined to be a passenger in a car. I have become that person that uses the invisible brake on the passenger side floor. The invisible pedal that annoys the driver (this is my way of apologizing for being so annoying – I get it). For some reason I have become very nervous. I assume it is a control issue. I had no control in getting cancer…so I am looking I am naturally looking to take control of what I can. I would think this feeling will calm down in a little bit (I hope).

I find I am MORE likely to decline Dinner or “Evening Out” opportunities (mostly because I still seem to fall asleep before 9:00), and LESS likely to veer far from my children (something they are finding particularly annoying).

I am MORE introspective and philosophical (as my brother says), and LESS caring about my appearance. I definitely need to re evaluate this second part because, while their is so much MORE of me to love I would prefer the adoration be LESS Body mass related and MORE Personality related. Face if the MORE LBS.on the scale translates to LESS clothes that fit the body. And I am particularly fond of clothing, so I think it prudent to stay in a weight class that I can be comfortable in them.

I find I am MORE interested in getting my life organized, but have LESS focus to actually accomplish that task — at the moment. I can sit and try to go through a pile of papers and an hour later, still get nowhere…It is somewhat frustrating. The upside of this is that now I have at least been giving myself an A+ for the effort.

I think, I just want MORE of my old life back, and I am LESS willing to wait for it. I am trying to make it happen now. So bare with me a little bit. Because it is MORE likely than not, that I have changed, and LESS likely that I will be the same woman I was before.

So I hope that the new me is okay or even better — MORE or LESS!

Enjoy

Carol
@funnycancermom

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How Do I Feel?


It is a seemingly mundane question for most — but not for me! For the last 6 months I would have a different answer for you every day of the week. But all related to my chemo therapy treatment. Today that is a different story, yet I still have so many different answers to that question.

As part of my regular “chemo” cycle, today is not a good day. I am tired and my mind is somewhat scattered. I just feel Blah. My energy is not high, and I don’t really feel like myself. It is not different than any other Wednesday after chemo though — and that is oddly comforting.

But at the same time, I am elated. I work under the assumption that I will never have to go through this again, and this is the last cycle of Blah that I will have to endure. So I have been whispering this notion to myself all day. I hear myself repeating “This is it, I am almost done; This is the last two days of this yuckiness” And that brings a smile to my face. And a lightness to my shoulders — which had begun to weigh heavy lately.

I also feel appreciative and appreciated for/by all those who have kept me going these last months. But honestly I also feel overwhelmed. I feel I need to tell everyone how thankful I am for what they have done for me…Yet I don’t know the appropriate way to do that. I want to make sure that you (and everyone) knows how deeply grateful I am.

But mostly I feel happy. Just to know that I am done and I can move on to the next chapter in my life. I want to get back to living with out skiddishness, to having a day with out worrying about what the next day will bring, and I am excited for spending many consecutive days unconcerned that my future is not full. Because while I never let on that these thoughts were in my head — They were…but today I finally feel like I can let those thoughts go — and hopefully I will never have to think of them again.

So the answer to the question is

TODAY I FEEL LIKE my life is coming back…FINALLY!

ENJOY TODAY

Carol

@funnycancermom

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A Gift With A Purpose!


This week I was introduced to a gentleman who represents a product with a “purpose”. It is a rare and unique concept – and done exquisitely…I might add. My husband, Scott has been an unbelievable advocate during my illness – and as an advocate to find sponsors for my Race for the Cure Walk Team. He has introduced me to Indy, the representative for Curvature Wines…and hearing the message behind this company has left me speechless…But my fingers still work, so I would like to tell you all about it. People that do good things and expect nothing in return deserve accolades greater than my blog, but it is a start!!!

Curvature Wine is a product of two kindred spirits meeting. Suzanne Pride Bryan, of the Pride family Vineyards in Sonoma County, and Cristie Kerr, Pro Golfer extraordinaire; as well as a lover of fine food and wine. Both women have lost family to cancer (Cristie losing an Aunt to Breast Cancer – and, luckily, her Mom has survived her bout with Breast Cancer). Together they have came up with a way to honor life while simultaneously helping to eliminate a disease that can indiscriminately take life away. Curvature Wines: They are exceptional my husband says. As one of NY’s “wine” guru’s he boasts about all the positive’s of this brand.

For me it is the purpose of the company that I so admire. One Hundred percent of profits is donated back to Breast Cancer Research and Breast Cancer Charities. How awesome is that to create such a high quality product and use the profit’s to find a cure for Breast Cancer. AWESOME. Honestly, it is like CHANEL or GUCCI creating a small line and giving 100% of the profits to charity.

I admit (full disclosure time) Scott’s store is the only store in the Tri-State area to carry it – but I am not talking about this to promote his store. I am talking about how awesome Cristie and Her Mom, Linda, and Suzanne are, and I don’t even know them. When Scott told Indy about me he (and Curvature Wines) jumped right on board to help me out, and to help me reach my fund-raising goal for the walk. Just so you know, between online and cash donations we are almost at $10,500.

Cristie’s philanthropic ventures are well known. Her Birdie’s for Breast Cancer organization has raised over $1.25 million. This money has gone to open the Cristie Kerr Women’s Health Clinic in Jersey City – 1t is the only comprehensive breast care facility in Hudson County to cater to “uninsured” women and men. To date they have helped over 1,600 patients. I hope to begin volunteering there when I finish treatments, and also give back. Another lesson of this Wine venture….giving back is curative and tasty!!

Anyway, I just wanted to say thank you to Cristie for her desire to give back!!!

Enjoy today
Carol
@funnycancermom

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The Flip Side


Call me crazy, but yesterday I was practically “school girl” giddy. On Friday, I was notified that my 7th chemo treatment (2nd to last treatment) would have to be postponed due to the impending Hurricane Irene. The thought sent me into a state of depression fro a few days. I have plans, I have a schedule, and I am un-accepting of that changing. All weekend long I concocted stories in my head; stories to make ensure that if appointments opened up for monday (or Tuesday) I would be the first to snag one. I thought of the child care angle (though my kids are almost 12 and I have friends her were on call), I thought about being will to sit all day and wait for an open chair, and, of course, I thought about all out begging…I have no shame — I want this done with.

Well in the end I had nothing to worry about. Dr. Mills called me 1st thing Monday and said she was there to come on over. I may have to wait for the protocol nurses, but they would definitely get my treatment in. HORRAY! So my friend Elaine drove me on up. Hurricane Irene had done damage, but it also made the office uncrowded. I was up in my treatment chair by 10:30. My nurse today was a different one than I was used to, but she did an exquisite job finding a vein and drawing my blood. I was back in my mom’s car by 12:30! And for what ever reason I was up and perky all day (and all night – Man steroids really do keep you hyped up). I got home and had some quality time with my husband before the kids go home from their friend’s houses. I relaxed for an hour or so, and then I sat on the tennis court watching my son play with my husband, My friend Wendy and her son Daniel. My Daughter and her friend rode bikes and jumped rope (which I tried but realized at 50 – I mean 49 – my jump is a little rusty).

Usually by 5 or 6 I am ready to crawl into bed for the night but I was positively giddy. So the evening continued with a great impromptu dinner out with my friend Amy and her family. We sat outside on a gorgeous night, on the water, watching the sunset. I was feeling fine and famished (as usual). Was this feeling of jubilation from the breathtaking setting, maaaybe; was it because I had 7 done and only one left – Poooossibly; Was it because The support, love and warmth that has surrounded me through out this entire ordeal has lifted me to a higher plain of being…Ok really? But that sounded poetic didn’t. 🙂 But I do think that I have found a great combination of things to get me through all of this and change my life for the better. Since my 1st treatment on May 4, I realize I having a great support system – family, friends, and community; I believe that having a positive outlook on your time in treatment as well as what you hope to achieve after treatment is a must; that getting my priorities in line and keeping things in perspective can be hard but can be life changing; learning when it is time to stand up for yourself…and not back down has helped me find (and push away) the right Dr’s and have allowed me to ignore the negative influences during this period in my life; but most important of all.. I have learned to laugh at life and enjoy what is thrown at me…because after all this was only a short bump in what I hope to be a really long and full life. Full of love, laughter, family and friendship — and, yes, even some tears and sadness. With out one you can’t understand the other.

So here I am on the flip-side of my May 4th f=post titled 1 down 7 to go…

Today is 7 down 1 to go….

Hip Hip Horray!

and ENJOY today

Carol

@funnycancermom

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The Silver Lining


What does it say about me that even though we are having a Hurricane in NY and just had an Earthquake — things are pretty good with me? Is that one of those HMMMM moments. I am thrilled that the kids are home. We have been spending a lot of time as a family — which I know will not happen as much once the craziness of “school” and “activities” start in two weeks. I have been taking advantage of every moment. Admittedly a little bribing needs to be done because unfortunately Matt has some of the same characteristics as Scott. (For example, today I took him clothes shopping – since he grew 3 inches at camp and his long pants are now board shorts on him. You would think I was taking him into a torture chamber. The moment we walk into the store – the eyes start rolling and e is already ready to leave. Oy!) The kicker is, after a few minutes he was totally into i — trying on pants and shirts, and putting outfits together. I was impressed. Later, when I said “see that isn’t so bad” He responded “it was torture.” Oh well, I still had fun.

My daughter (who could shop for a living) got her braces this week. The braces have made her a little uncomfortable, so she is staying a little closer to me than usual. I have to say that braces today are way different than when we wore them — you know back in when electricity was invented. Now there are only a few bands around the teeth, and colored rubber bands (that you can switch ever 6 weeks) – it makes me briefly jealous of the experience. Though lets face it — no matter what I wouldn’t want braces on again.

In the evenings, Scott and the kids have been playing tennis while I cook dinner. I know how June Cleaverish that sounds, but I love watching them from the kitchen window as I cook. I started playing tennis last year, but my surgery has put that on hold for a while. Seeing them play gives me the impetus to get back to playing once I am done with treatment.

The Hurricane threatens our plans for the weekend, but it will also give us more family time. Even if it becomes game night, or all of us squeezing together on the couch to watch a movie — I am looking forward to it. I know that the weather has put a kibosh on some of my friends vacation plans and I am truly sorry for them…But I am not upset about the impending storm. I know where my parents will be; I know my brother has landed safely in florida; and most of my friends are will either be home from vacation and/or haven’t left yet. So that takes most of the worrying out of it!

Next week I have chemo again and I am back to being reliant on others to help me care for my family….So, I say “bring on the rain” cause I have a family weekend coming up and it may be one of the last for a while….

Stay Dry and Stay Safe…and keep an eye out for the eye of the storm…But most importantly,

ENJOY TODAY!

Carol

@funnycancermom

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Birthday Wishes


Many of you already know that I am turning 50 on September 18th. so I sent out this email to my entire contact list.

Dear Friend,

I am not trying to be pushy, but I really would love you to be a part of a very significant day in my life. On September 18, 2011 I turn 50; and on September 19th I will get my final chemo therapy treatment that will hopefully irradicate any left over signs/cells/remnants of breast cancer that may have still been left in my body after surgery.

The walk is important because it brings together other Survivors, Family members, and/or friends that have been affected by this disease. And as one community, we walk/run together to put an end to it!!!

I know that I have emailed already, but if you are walking with me I need to know as soon as Monday August 29th…for I am having T-shirts made for our team, and that is the deadline. To do that you MUST sign up online through http://www.komennyc.com, and search for the race page for team THE CANCER MADE ME DO IT. Their is a sign up charge and then you start getting donations by emailing it to all of your friends. If you have any questions please feel free to email me and I can walk you through it.

If you can’t make it to the walk, I hope you will support one of your friends that is walking, or support me by going to my race page and donating. I am shamelessly asking you to donate — make it a Birthday gift to me if you must….

Please log on and join or donate as soon as you can. And if you become a team member — start fundraising as soon as you can.

Thank you for all of your help.

I hope to see you on race day!.

Click here to visit my personal page.
If the text above does not appear as a clickable link, you can visit the web address:
http://www.komennyc.org/site/TR?px=1268984&pg=personal&fr_id=1230&et=UBxXw1GoP9jiqbtUmSY95g..&s_tafId=61036

Click here to view the team page for The Cancer Made Me do It
If the text above does not appear as a clickable link, you can visit the web address:
http://www.komennyc.org/site/TR?team_id=44251&pg=team&fr_id=1230&et=aAKRY2N-Uax1JxOfVi0J1A..&s_tafId=61036

If you no longer wish to receive email messages sent from your friends on behalf of this organization, please click here or paste this URL into your browser: http://www.komennyc.org/site/TellFriendOpt?action=optout&toe=31c8fd68afe0f5ca6b25114ec2935f95

The response has been unbelievably heart warming. Even those who can’t make the race have found ways to be a part of my team. My friend Kathy (who owns Katherine Winters Salon) is cutting for the cure. On September 9th she is donating her profits to my team. So if anyone wants a haircut – aside from the fact that she is AWESOME at what she does – she is a woman with a gold heart.

You have heard the expression “it takes a village” I live in a great one. Wow what a great feeling — This is going to be the best birthday ever….And you all helped make it great. I am forever grateful and I thank you all. You are the ones who are awesome and who have inspired me…

With great love and respect for you all!

Carol
@funnycancermom

Enjoy today!

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Past, Meet Present


I live in a town that I never visited as a child. Even though it was very close to the town I grew up in. So I found it strange that when I moved here, I have met many people who I knew from different parts of my past. The first time I would run into a person that I knew, the memories came flooding back. I would stand talking to the individual while simultaneously visualizing the last time I saw him/her, the last place I was when I saw him/her, and the circumstances surrounding me at the time I last saw him/her. Now that doesn’t happen the next time we would run into each other, but that first encounter always opened the floodgates.

Tuesday, Scott and I decided to take the kids to Boston for a few days. Through a friend we had gotten Boston Red Sox tickets. Somehow my son has become a Boston fan — though I am not sure how that happened. Anyway, after I got the tickets, we thought we would go and spend a few days there. Seeing the game, walking around Fanuel Hall, seeing the Aquarium, going on the Duck tour…the fun touristy things…which where not the usual things I did when I went to BU. The kids were thrilled – especially when I told them about Anna’s fired Dough. Anna’s fried dough was a Kiosk at Fanuel Hall (back in the 70’s and 80’s) that served fried dough with powdered sugar. REALLY WHAT IS NOT TO LOVE ABOUT THAT! I loved them so. I remember that during my Senior Year, when I had to go to the Hospital for Blood Tests or weekly check-ups, I would swing by and treat myself to one. It was my way of rewarding myself for being a cancer patient; and frankly being 5’10 and only weighing 126 lbs,I figured I could use the weight gain. I am ashamed to admit that my present day “cancer body” is a little jealous of my past “cancer body”. But eating what you want whenever you want to — doesn’t Suck — just sayin’.

Anyway, Tuesday morning we packed up the car and off we went. The kids were in the back enjoying a movie, Scott was in the passenger seat enjoying a snoozy and I was driving and listening to my country tunes. We had been driving for about 2 hours when we hit the Mass. Pike and out of nowhere, I began to cry uncontrollably. I couldn’t stop myself. Thankfully my kids were wearing headphones. My head was spinning with thoughts. I realized I hadn’t been back to Boston since college. I left in 1983 – Cancer Free! And yet here I am returning No longer Cancer free. It was as if I was meeting an old friend and the memories came flooding back. At first I couldn’t figure out what brought the tears on and then I saw a Billboard like sign (one that I had seen a few miles back when the crying started). It was the sign for Tufts Medical Center – the place I was treated, the place I went every day for 60 days. A place that I credit for saving my life, and for also bringing me back full circle.

I regained my composure in a few moments, but it was a real watershed moment. When we got to the Hotel I told Scott all about it, and he sweetly told me I should have woken him up. But this was one of those private moments I needed to face and deal with on my own. These were emotions hidden so deep, that they even shocked me as they appeared. I needed to face my past, by concentrating on my present. So I put the past away and looked in my rear view mirror to see my present and future still enjoying their movie in the back seat; I deal with my life the only way I know how…I enjoy what I have — and that what I have is a life filled with people I love.

I am positive about one thing though, the next time I come back to Boston, my memory will not be about cancer, but rather about the great 3 days we had as a family, and the amazing Red Sox Triple Play we saw at Fenway.

I know where I have been and I know where I am going…and I hope that my future leaves all of my cancer memories in the past.

Enjoy today

Carol
@funnycancermom

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LIVING OUT LOUD


A friend once used the expression “Living Out Loud” and I really felt it such an amazing phrase to explain how our children socialize these days — between facebook, twitter, myspace, etc; that I have sort of adopted this expression, and use it to describe how I want to (or don’t want to) live my life — and hopefully teach the same lesson to my children. We are a society that seeks approval or connection by blurting out our must mundane and routine activities to a computer or mobile device. This inanimate object then distributes that information to a plethora of people. (and yesterday I found out that if you are a Snooki – you are talking to about 1.2 million people – EGADS) I admit that my blog is definitely a product of a “living out loud” world; I do hope I don’t ever get to the point of telling you all when I need to get up to use the bathroom. And while my intentions are to “emote” they are also to reach others that face what I face and have turned inward (others who find it easier “living in silence” which I don’t think is any better). I hope to show these individuals that even something bad can be can have a shiny lining – admittedly maybe not a silver one – but shiny non the less. So when is it that we have become unable to adjust the volume of our lives? Can it there be a happy medium between out loud and silent?

Yesterday I had lunch with 2 friends and we talk about just that. As our children are about to come home from camp we talked about what we want our kids to do “differently” this year. And how we want to package that bundle of expectations we, as parents, have for them. I got to thinking about the way my parents dealt with setting expectations. Oh now I remember, the set them and stuck to them, and they were non-negotiable. And I knew it. I am not trying to say that I didn’t try to avoid doing what I should, or get away with doing something I shouldn’t (because I did – and often). And though I constantly screamed “your so unfair — all the other parents let their kids do this, or let their kids go here, or whatever the situation was” — truth be told their standing firm, their unflappable stance undoubtably drew the line between right and wrong/fair and unfair and was a security net for me. Since it seems to be true that hindsight is 20/20, I am able to see the wisdom of their approach. I think I learned to see things from both sides and understand that sometimes the less popular answer is still the right answer. It is true, I want my children to love me, and to like me — but I think my parents perspective has taught me that I have to be okay with the fact that they may not always do both at the same time — especially not in the teen years. But when they get older they will do both equally — and I will let them know how great that is — silently and out loud.

So, tomorrow my children come back home — and I plan to read them my summer blogs.. I hope that they will not find them to preachy or to sermony…but just me telling my stories out loud to those that want to listen! I hope they will see how I am able to laugh at even my own “schtick” – cause we all got some. And, yes I want them to know that Cancer is not a joke. But if you set your expectations for the experience, well you can be surprised at what happens. Face it–what good would it do to scream “I HAVE CANCER DAMN IT” Everyone has their own problems — I know because it’s written all over Facebook.”

I just think (or I hope) that if I set the right volume for my life these days — my family can be proud of my what I am doing, accepting of my openness, and most importantly, able to hear my voice and maybe even learn something from it!

Have a great day and Enjoy!

Carol A.

@funnycancermom

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