Category Archives: Uncategorized
What can I say, this is my summer to enjoy. My children started at sleep away camp 4 summers ago. Honestly the 1st summer I was to consumed with whether the kids were enjoying/having a good time or not. The 2nd summer, I had it a little easier — but my sister-in-law had been going through chemo so I travelled out to help her a few times, so it was not a totally relaxing summer (no complaints though, I was happy to go and help). Then of course last summer was my turn…and needless to say, 0% relaxation was involved. Chemo, my Mom, and other family issues made for a summer I never want to repeat (though the kids enjoyed camp). So when it came time to think about what I wanted from this summer there were a few different scenarios.
1st – I wanted the kids to have a great and stress free summer….With nothing to worry about….CHECK
2nd – I want everyone to be healthy and happy…CHECK CHECK
3rd – I want to relax and do what I want, when I want and how I want….CHECK CHECK CHECK (so far)…but this last has lead to a small issue….
When I was young, I remember hearing stories about relatives (usually my grandparents siblings) had been taken by CONSUMPTION. It all seemed so common, and I could nt really understand what it was they were talking about. I gathered what they were saying was that CONSUMPTION could kill – and often did.
We since my children have left, I have consumed massive (yes I mean Massive) quantities of food…I have been eating with abandon (an odd old saying, but seems fitting). And as I got on the scale this morning…I THOUGHT I WAS GOING TO DIE….FROM CONSUMPTION OBVIOUSLY!!!!
I am back, and I missed writing to you all, I am going out for a walk now (because won’t that take off a good 5 lbs?) Health and Happiness aside, I really plan on enjoying this summer…but maybe I will get out more and consume less OR NOT!
Well I have been talking and talking…scratch that, I have been writing and writing to you for almost a year now. Wow! My posts have been read over 11,000 times…and that is pretty cool, as well. But I thought it was time to put a voice to these words and let you know what I am up to…Luckily enough two unbelievably talented photographer/videographers were interested in my story – so they have created this to help me launch my new Charitable foundation (My Mission and vision is below). Thank you all for being here with me!!! You inspire me!
Alright it is official, I have submitted my first article for consideration in the NY Times! YIKES! They probably won’t pick it anyway, but as they say at the Oscars “It’s an honor just being nominated.” In this case, it is enough for them to even consider my article. Nobody I grew up with would have ever pegged me for a writer – EGADS!
I finished the editing process this afternoon — I had written the piece 3 weeks ago. And after getting some “editing” help. I nipped and tucked it into its final form. And then I read it, and read it again, and just to be sure…I read it 1 more time. Cause all of you know “SPELLIN’ AND GRAMMAR AIN’T MY THANG!” But I thought for the NY Times, I should try to do my very best. I am actually scared to go back and read it again, for fear (now that I have submitted it) I made a silly error….Anyway, I sat at my computer with my finger floating over the “enter” key which would send it soar through cyberspace. Should I do this? Why do I want to do this? Screw it! I am doing this…and
Well, I will not hear for a few weeks; I find solace in that somehow! And then if it doesn’t make the paper…atleast I have a future blog written!
I have got my fingers and toes crossed!
I was watching his post game speech…you know the one in which he Thanks’ “Jesus” for his platform. Anyway, I was wondering. Is this really what the “savior” is doing on Sundays…Watching Football? I can think of other things he should be doing…don’t you! I mean if he/she can’t tear themself away from the TV, than at least perform a Half-Time miracle or something – cure cancer, stop world hunger, somethin’!!! I mean Really!!! Mr. Tebow is getting paid a hefty sum of money to perform…If you, as his leader, are doing the work for him, isn’t that cheating – Whadda got money on the game?
Just a thought!
Holidays are coming. Gifts are being wrapped, and I am making room for the new purchases. I am always surprised at how great it feels after I have finished a good purge. I feel accomplished, I feel organized, and ready to take on anything that comes.
The last few days I have done a different kind of house cleaning. Today I am going for my colonoscopy. So when I talk about cleaning out the house…I referring to my own inner house. An odd thing to write about, but let me assure you I wish I knew more about it before my first one (20 years ago). The preparation is key and really the trick to make this not so bad – and yes, like my chemo, can have some real upsides!
First of all — know your “prep” options. Some gastroenterologists still stick with the old fashioned “go-lightly drink” In my opinion absolutely fowl!!! Another drink is the Magnesium Citrate (just a medical term for YUCHY!) Now I am not saying these two methods aren’t affective,; cause they are! But they also take a toll on your whole body leaving drawn, tired, and generally feeling poorly.
About 10 years ago, I was introduced to a new method – “Visicol Pills” This was a huge improvement. They are horse pill size and you have to take a lot a short time (along with a gallon of water)…but I didn’t have to drink that nasty stuff. Then 3 years I was introduced the Miralax and Gatorade prep. It absolutely does the job, while simultaneously replenishing your electrolytes. You do not get that same draggy, yucky feeling.
Okay and here is the pitch to get your colonoscopy when you are supposed to — Early detection is the #1 defense against colon cancer. And if that doesn’t convince you here is the other reason (and my favorite one)….
Yesterday when I started the “prep” I weighed 7 pounds more than I do today…THATS 2 WEEKS ON WEIGHT WATCHERS!!!!!
So when it is time for you to get your intestinal house cleaned, remember there is a light at the end of the tunnel…or just know you are lighter at the end of the procedure. In my book, either way, a win win! Viva La Purge!
I know that I have not written in a week or two. I admit that I am a little defensive about it as well. I have grown to love writing. Which is somewhat of a shock — and any of you that know me from high school will agree. See I was not the student (actually I was a student with Dyslexia), and anything to do with Reading and Writing usually sent me into a seemingly never-ending state of frustration and misery. Honestly, I don’t really think I learned how to read and write until 6th grade. But what I lacked in reading and writing ability — I certainly made up or with my ability to emote.
As my twins have become tweens, I am reminded (constantly) that all teenagers and young adults are passionate about their beliefs and feelings. And that these beliefs stated about everything and anything: From how much one hates vegatables to how much she loves the male lead in the new movie “FOOTLOOSE.” As with my childhood, if they are was happy they exude was a kind of euphoria, and if they are sad they would sob about how it is the worst day ever. As a child with a disability, I gave my emotions everything (as do my kids). It was my release or my way of telling everyone how I was doing. After years of tutors, and just trying to catch up, I think I finally did. And now, as you all read, I use my words to emote; well not totally true, my kids say I am still a yeller at times – but that is just motherhood I think. Who wouldn’t yell when the kids decide to take their new clothes roll and crumple them into a ball. Then shove them in their closets because “it saves room and I can fit more stuff in there…like my football and basketball!…REALLY! OOPS, sorry their I go emoting again.
Back to my original point, family and friends have asked “why are you not writing anymore”….and I am still writing – it was just a 1 1/2 week hiatus. In that time I was asked to broaden my scope a little, and write an article for a local paper. I know I sound a little defensive about my writing, and that is because I am. I am not sure how you will all feel about it now, that I am “cancer free”. Up until know I have been able to relate everything back to my experience with cancer and chemo. Which I still want to do; but I also want to talk about other things now. Frankly, some of these things are brought on by the fact that I am a 2x cancer survivor – but some of these things are just part of everyday normal life. And my quandry relates to the fact that the blog is titled “The Cancer Made Me Do It” and that I am the @Funnycancermom. So can I talk about anything I want to? Can I be just a funny mom who had cancer- twice? Well we will see, cause the blog will go on!
If you still continue to like it it is because I am good at expressing myself…but if you don’t just remember….THE CANCER MADE ME DO IT!
I don’t know if it is just me, but I have begun to notice an onslaught of “cancer articles” or press about amazing “cancer stories” lately. Last weeks NY Times Style section highlighted a woman and her fight against breast cancer. A few weeks ago the NY Times magazine cover was about a the woman who wrote “Crazy, Sexy, Cancer.” A few months ago, the NY Times also had an on cancer “etiquette” (What to say and what not to say to someone who has been diagnosed with cancer). I think the focus is both wonderful and disturbing on several levels.
This increase in public awareness is wonderful because it brings constant attention to a disease that, I believe, will one day have a cure – and not just for one kind of cancer but for all kinds. I mean who doesn’t know someone who hasn’t had, or has some “strain”. It is just a little scary to think how large a grasp this disease has on the world. And with October being Breast Cancer Awareness month, there have been a glut of publicity from various News outlets. I believe keeping a constant focus on raising funds for cancer research is hugely important, but I worry, a little, that all of this press may dull the “enormity” of the situation. I feel many of begun to say. “It’s too much already.” And because the focus of most of the publicity is about “celebrities or well connected individuals” – many just seem to ignore it. It seems that the press has forgotten about the “commoners”: The ones who are out there fighting the fight everyday; you know those that don’t have insurance, or don’t have help, or don’t staff to bring them to and from treatments. You know, “We The People” – not them – the “famous”!
I have written about “me and we” for the last several months. And I am glad to say that my message (about me and we the people) seems to be ahead of the curve when it comes to what’s hot in “cancer talk” versus what’s not! In May I wrote about “cancer etiquette” (1 month prior to the NY times article piece; and 2 weeks ago I wrote about the Rivertowns response to Breast Cancer Awareness Month…www.riverjournalonline.com/villages/irvington/2047-whats-all-the-pink-about) – while the NY Times article came out today about NY’s response to Breast Cancer Awareness month. I have to say that I would have hoped that the national and international press would focus more on the “lesser known individual stories.” Stories like the ones that The Enterprise and The River Journal have highlighted. The local hereos and fighters. Because everyday is a struggle for them, and yet these people never stop believing in the positive and the hope. They do it all with out staff or without pomp and circumstance. They are also ahead of the curve, because they are and experiencing what everyone else is reading about.
So like our heroes in the armed services, these other everyday “we the people” should be congratulated and commended for keeping up the fight and forging ahead, facing adversity with a smile and doing something to help make the world safer…a place where the only cancer around is that of the Astrological Sign. That is what the press should be writing about- and I hope this blog is ahead of the curve again….let all the other press follow along….
It is a seemingly mundane question for most — but not for me! For the last 6 months I would have a different answer for you every day of the week. But all related to my chemo therapy treatment. Today that is a different story, yet I still have so many different answers to that question.
As part of my regular “chemo” cycle, today is not a good day. I am tired and my mind is somewhat scattered. I just feel Blah. My energy is not high, and I don’t really feel like myself. It is not different than any other Wednesday after chemo though — and that is oddly comforting.
But at the same time, I am elated. I work under the assumption that I will never have to go through this again, and this is the last cycle of Blah that I will have to endure. So I have been whispering this notion to myself all day. I hear myself repeating “This is it, I am almost done; This is the last two days of this yuckiness” And that brings a smile to my face. And a lightness to my shoulders — which had begun to weigh heavy lately.
I also feel appreciative and appreciated for/by all those who have kept me going these last months. But honestly I also feel overwhelmed. I feel I need to tell everyone how thankful I am for what they have done for me…Yet I don’t know the appropriate way to do that. I want to make sure that you (and everyone) knows how deeply grateful I am.
But mostly I feel happy. Just to know that I am done and I can move on to the next chapter in my life. I want to get back to living with out skiddishness, to having a day with out worrying about what the next day will bring, and I am excited for spending many consecutive days unconcerned that my future is not full. Because while I never let on that these thoughts were in my head — They were…but today I finally feel like I can let those thoughts go — and hopefully I will never have to think of them again.
So the answer to the question is
TODAY I FEEL LIKE my life is coming back…FINALLY!
Yesterday was a day of great events. All were successful (both as a fundraising effort and a as a a “personal appearance”). During the day my friend Kathy had a day devoted to The race for the Cure. Her version was “A cut for the cure.”. She cut hair, and put pink feathers in kids hair, and every $ that came in that day went directly to charity. Awesome idea. I was so thankful for her creating a way to help me in my fund raising efforts for the Susan G. Komen Foundation. Honestly, my husband and I thought she would raise about $1,000….Well how about she more than doubled that! AWESOME AWESOME AWESOME! She is a special lady and it was a really special day. At the end of the day she new I had someplace to be and she suggested that I wear my wig. I hadn’t done that yet…and frankly I was a little scared. I really didn’t kno how people would react (or if it really looked okay).
I always wanted to go to a movie premier where you walk the Red Carpet…and everyone is telling you “great you look”. It has always been one of my fantasies. Well last night I got the smallest, most miniscule taste of it and it was quite scrumptious.
Deep down I was happy to wear the wig. Frankly, I have become a little sick of wearing a baseball cap all the time. I look in the mirror and see the cap and it just screams back ‘YOUR BALD’. And though I am not done with treatments yet (8 days and counting)…my psyche is done! It reminds me of my last few weeks of pregnancy. By that time I was so ready to get these kids out of me, that I would actually hope for an early labor. I was cooked, backed, D…O…N…E…Done! Well the baseball cap phase is giving me that same feeling. I think that I will never wear a hat again after this (well I hope I won’t).
But anyway, last night was the “The Wig” premier — and no that is not a movie. So I arrived at my friends with my wig and my “Madonna” sunglasses. (She and I actually have the same exact pair). And,boy did my friends make me feel like a celebrity. Friends are great that way. Here I was, at this wonderful party my friend threw (it was her husband’s 45th birthday) and I felt like a star entering a room. The guests were all having fun, the food was great, the atmosphere was festive…I really couldn’t ask for a better place to “present the wig”.
Many didn’t know it was a wig at first (or didn’t let on). But my close friends knew — and what I saw in their faces was a true sense that the wig “fit” me well. By that I don’t just mean it fit my skull. It really fit my personality, my sense of style, and it was a compliment to me “upbeat” demeanor. I was really happy. Even though I left the party early – from sheer exhaustion, it was a really exhilarating night. One I will remember for awhile!
From Beginning to end yesterday was amazing…and to all I thank you…
As I said earlier…8 days and counting!!!!
What does it say about me that even though we are having a Hurricane in NY and just had an Earthquake — things are pretty good with me? Is that one of those HMMMM moments. I am thrilled that the kids are home. We have been spending a lot of time as a family — which I know will not happen as much once the craziness of “school” and “activities” start in two weeks. I have been taking advantage of every moment. Admittedly a little bribing needs to be done because unfortunately Matt has some of the same characteristics as Scott. (For example, today I took him clothes shopping – since he grew 3 inches at camp and his long pants are now board shorts on him. You would think I was taking him into a torture chamber. The moment we walk into the store – the eyes start rolling and e is already ready to leave. Oy!) The kicker is, after a few minutes he was totally into i — trying on pants and shirts, and putting outfits together. I was impressed. Later, when I said “see that isn’t so bad” He responded “it was torture.” Oh well, I still had fun.
My daughter (who could shop for a living) got her braces this week. The braces have made her a little uncomfortable, so she is staying a little closer to me than usual. I have to say that braces today are way different than when we wore them — you know back in when electricity was invented. Now there are only a few bands around the teeth, and colored rubber bands (that you can switch ever 6 weeks) – it makes me briefly jealous of the experience. Though lets face it — no matter what I wouldn’t want braces on again.
In the evenings, Scott and the kids have been playing tennis while I cook dinner. I know how June Cleaverish that sounds, but I love watching them from the kitchen window as I cook. I started playing tennis last year, but my surgery has put that on hold for a while. Seeing them play gives me the impetus to get back to playing once I am done with treatment.
The Hurricane threatens our plans for the weekend, but it will also give us more family time. Even if it becomes game night, or all of us squeezing together on the couch to watch a movie — I am looking forward to it. I know that the weather has put a kibosh on some of my friends vacation plans and I am truly sorry for them…But I am not upset about the impending storm. I know where my parents will be; I know my brother has landed safely in florida; and most of my friends are will either be home from vacation and/or haven’t left yet. So that takes most of the worrying out of it!
Next week I have chemo again and I am back to being reliant on others to help me care for my family….So, I say “bring on the rain” cause I have a family weekend coming up and it may be one of the last for a while….
Stay Dry and Stay Safe…and keep an eye out for the eye of the storm…But most importantly,
I live in a town that I never visited as a child. Even though it was very close to the town I grew up in. So I found it strange that when I moved here, I have met many people who I knew from different parts of my past. The first time I would run into a person that I knew, the memories came flooding back. I would stand talking to the individual while simultaneously visualizing the last time I saw him/her, the last place I was when I saw him/her, and the circumstances surrounding me at the time I last saw him/her. Now that doesn’t happen the next time we would run into each other, but that first encounter always opened the floodgates.
Tuesday, Scott and I decided to take the kids to Boston for a few days. Through a friend we had gotten Boston Red Sox tickets. Somehow my son has become a Boston fan — though I am not sure how that happened. Anyway, after I got the tickets, we thought we would go and spend a few days there. Seeing the game, walking around Fanuel Hall, seeing the Aquarium, going on the Duck tour…the fun touristy things…which where not the usual things I did when I went to BU. The kids were thrilled – especially when I told them about Anna’s fired Dough. Anna’s fried dough was a Kiosk at Fanuel Hall (back in the 70’s and 80’s) that served fried dough with powdered sugar. REALLY WHAT IS NOT TO LOVE ABOUT THAT! I loved them so. I remember that during my Senior Year, when I had to go to the Hospital for Blood Tests or weekly check-ups, I would swing by and treat myself to one. It was my way of rewarding myself for being a cancer patient; and frankly being 5’10 and only weighing 126 lbs,I figured I could use the weight gain. I am ashamed to admit that my present day “cancer body” is a little jealous of my past “cancer body”. But eating what you want whenever you want to — doesn’t Suck — just sayin’.
Anyway, Tuesday morning we packed up the car and off we went. The kids were in the back enjoying a movie, Scott was in the passenger seat enjoying a snoozy and I was driving and listening to my country tunes. We had been driving for about 2 hours when we hit the Mass. Pike and out of nowhere, I began to cry uncontrollably. I couldn’t stop myself. Thankfully my kids were wearing headphones. My head was spinning with thoughts. I realized I hadn’t been back to Boston since college. I left in 1983 – Cancer Free! And yet here I am returning No longer Cancer free. It was as if I was meeting an old friend and the memories came flooding back. At first I couldn’t figure out what brought the tears on and then I saw a Billboard like sign (one that I had seen a few miles back when the crying started). It was the sign for Tufts Medical Center – the place I was treated, the place I went every day for 60 days. A place that I credit for saving my life, and for also bringing me back full circle.
I regained my composure in a few moments, but it was a real watershed moment. When we got to the Hotel I told Scott all about it, and he sweetly told me I should have woken him up. But this was one of those private moments I needed to face and deal with on my own. These were emotions hidden so deep, that they even shocked me as they appeared. I needed to face my past, by concentrating on my present. So I put the past away and looked in my rear view mirror to see my present and future still enjoying their movie in the back seat; I deal with my life the only way I know how…I enjoy what I have — and that what I have is a life filled with people I love.
I am positive about one thing though, the next time I come back to Boston, my memory will not be about cancer, but rather about the great 3 days we had as a family, and the amazing Red Sox Triple Play we saw at Fenway.
I know where I have been and I know where I am going…and I hope that my future leaves all of my cancer memories in the past.
It is not that I am heavy, but for me I am 20 Lbs. heavier than I was 2 years ago. And I have gained quite a bit of my weight during chemo. Over the last 30 yrs I have made goal weight on Weight Watchers 5 times. (So YES that means I have gained a lot of weight 6 times). With each weight gain, I set a weight loss goal – which honestly gets higher each go around. But I do reach goal, so I have become a “Life time” member at Weight Watchers (an achievement you seek as a WW member). Of course the goal is to reach it once and never have to do it again. The over achiever that I am seeks to to collect Life time achievement award for reach “Lifetime membership status” the most; right now I have reached it enough times to secure status for my Granddaughters daughters generation. I am not sure this is the intended purpose for the philosophy of “paying it forward” — but I have never followed the norm.
See why I am so upset is the Dr.’s told me I would gain weight; so I in all honesty I could have tailored my food intake to offset it. But ever since chemo started I have enjoyed a new fascination for sweets. I haven’t met a pint of “Half Baked” Ice Cream that wasn’t specifically earmarked for me. It is like those grocery stores know that I am coming and steer me right for that pint with my name on it. We really it has Ben and Jerry’s name on it but that is just a matter of semantics — “Ben and Jerry’s” and Carol sound very similar.
The problem is, the next morning (after I have consumed the entire pint myself) I stand in my closet getting dressed to go out and face the world with a smile; my objective being to show everyone that this “life with Cancer” can’t bring me down — Keep up the appearance that life is good. And frankly, until I pull up or on those jean shorts or leggings life really is okay.
Now I like a good muffin top toasted for breakfast – but when I am standing staring at the worlds largest human muffin top in my mirror…I lose my smile almost instantaneously — and the largest sigh of disgust escapes my subconscious and is heard through out the house.
And my poor husband has to put up with my moaning for the next 20 minutes. I run around screaming “on my goodness how can I let myself go like this; how can I not control myself; this is disgusting how can you want to be seen with me!” The horror on his face is obvious! Immediately I think he is also horrified by my weight gain — but I know that is not true. The real horror is from not knowing how to answer any of these statements I have just thrown at him. He is trying to dodge the bullet — you know the “Honey do I look fat in this dress” bullet. Only for Scott I am holding an automatic rifle — the bullets just keep coming and he doesn’t know how to answer any one of them. And let’s face it — anything he says will be wrong, and he knows it. It is a true no win situation. Honestly, I give him points for even trying.
After going through every bit of clothing I finally settle on an a line dress that covers everything up. I walk downstairs and my husband puts his arms around me and tells me I look beautiful. Okay he really is a keeper. And then I try to reflect on my mornings anxiety attack. I mean I really do feel fine most of the time, and I am heading into the home stretch of chemo. I know the treatments are cumulative so it is going (and has gotten) a little harder to be “UP” all the time. But I it does make me feel better to ‘put on a happy face’; and I think it has helped me all along.
So I will continue to “keep up the appearance” of always being happy — but know that pretty much every morning I go through this routine. And, luckily for Scott weekday mornings he off to work way before this process starts — it is only weekends he has to deal.
And know that soon I will be once again heading off to my Weight Watcher meetings to yet again seek the “lifetime Member Status”. But that’s life — and honestly, I am happy to be living it!
Muffin Tops to
As a child I was taught the 3 R’s – Readin’, Ritin’ and Rithmatic. Notice there is no E for english. After I left college, and entered the business world, I discovered that all of these subjects (as it were) have subsections. You know, like Business English, Retail Math, Legal Jargon, Scientific Math, Medical English….It all comes down to the fact that when it comes to words you have learned, you have to figure out which subsection the “appropriate” translation to use.
While I was in the garment business I learned that $2 plus $2 = $-5 (if you are the wholesaler) and +$10 if you are the retailer. I know it is very difficult to wrap your head around this equation — but it is absolutely true. Retail math just means ‘take a whole bunch of numbers and make sure the wholesaler pays the retailer more money than the retailer pays the wholesaler.’
Legal Jargon is another form of english, but with a lot of “here to fore’s”, “Forth with’s” and “parties” thrown in. That is just to confuse the party in first part from knowing what the party in the second part is talking about.
And then their is medical english — by which a simple problem becomes an “Itis or an “Osis.” Or a commercial for an acne drug that lists 87 side affects or conditions that could occur. I have gotten good at translating terms. Trying to translate these languages into other terms I understand got me thinking about other language subsections I have had to learn. Obviously there is a whole chemo language — “dose-dense” and CMF, and protocols, and the list can go on. But what about my day to day life. Do I need to translate things in my regular “mommy” life. And then I remembered the postcard I recently got from my son.
Camp is great and the kids are having a good time, but sometimes the counselors make them stop what they are doing and write a letter home. A silly concept, but one that is done at most camps. Matt is not always the best eater. He is pretty much a starch and sugar kind of kid; Though you would not know it from his 95 lb – 5’2′ frame. Anyway I figured eating would be a sporadic thing at camp. Matt also is not the best writer, so making him write a letter quickly you are not going to receive a literary masterpiece of any kind…as long as some english is involved, it is okay; because I have learned to translate his language as well.
Our 1st letter from Camp this year read:
Dear Parents, (showing his obvious attachment to us as individuals)
Camp is great. The food I can barly eat.
I was overjoyed…He tried Barley….of course not, he didn’t like the food. I get it….
Then I remembered his first letter last summer. One I must frame for later in life. summer at camp. It is where I realized Iam a gifted translater. This is, and will remain, my favorite letter from camp.
Dear Mom and Bad (yes he meant DAD):
I am here and the Wheater is God.
I smiled because I thought what a great letter. Later that night, when my husband got home from work, I showed him the letter. I was so happy about it. He read it and then spent about 20 minutes just contemplating the meaning…he was trying to figure it out. What could he be talking about….REALLY? I thought it is a great note. Scott was just perplexed by my enjoyment of the letter. “What is he talking about?” he asked. REALLY?
It obvioulsy says “The weather is good.” So now I use the wheater is god! as a standard response to things — and yes it is an inside joke to me. But we now have a new subsection language to add to the list of all the others — and is called “Camp Language.” Which frankly I find funny and enjoyable and in the realm of things — not so scary.
Enjoy and I hope the Wheater is God by you!
Today was treatment number 3! Yeah! I am almost halfway done. Wow where does the time go, it was just yesterday I wasn’t even scheduled for Chemo…Good Times! Good Times!..
Seriously though, I don’t think I have walked you through my treatments, and today is as good a day as any. I usually arrive at around 9 a.m. So far my friends Elaine, Meredith, Julie and my Mom have been my companions. I try to warn them before hand that they may see things that aren’t the happiest or easiest to take…But really the worst they have seen so far isn’t the patients, it is the fat hanging over the top of my jeans. And while you may not think that so bad — trust me I am often reduced to tears when seeing my own horror of blubber, so could you imagine how bad it is if it isn’t your own muffin top! Yikes.
I am usually greeted first by my nurse Nancy. She is a beautiful and funny woman. With a smile that really lights up any room. Her red hair and blue eyes make me believe that she has an Irish or Scottish background. The fact that she can sometimes speak with this sweet rhythmic Brogue – could also suggest that. But her humor always puts me immediately at ease. Even though it is her job to put me on a scale every time I am there. After the blood pressure and a few questions my Dr. comes in — Also a Nancy — coincidence…I think Not.
Dr. Nancy is a far more demure person by appearance; which is deceiving, because she too has a great sense of humor. She asks me questions about my last few weeks, does a few blood tests, answers any questions I have, re-states some rules (ones that I know but she so rightly knows I am ignoring), and sends me off for treatment. Like any regular Dr.’s appointment so far.
When I go upstairs to the treatment room, first you walk into a reception area to check in. It gives the nurses time to put in my cocktail order. And no I don’t mean my Cosmo. Though, wouldn’t that take the edge off. They mix up my drugs as I arrive, so everything is fresh. It is like a farmers market for chemicals in a way. Anyway, while we wait we get to watch this tropical fish tank. Filled with 3 fish and a big reef. Goldy – the big puffer fish, was being tortured today by a little blue “Dory” fish, and a Nemo. Meredith, Elaine and decided to speak (and use accents) that depict how we think the fish would sound (of course if they could talk) This activity kept us quite amused for the 10 minutes we waited. I even got a picture of Goldy, the bullied fish, and his attacker.
After our wait was over we entered the treatment room. I was lucky to secure the same spot. It is a corner chair with a lovely view of the Hudson River. The room itself, in decoration, temperature, and vibe, is cold. That is definitely something they should work on! Not that it needs to feel like a party room, but it should be a little warmer in feel anyway — more inviting. Cause frankly no one is coming there unless asked to —
After I sit, the nurse brings over my 1st infusion and pills to get me started. In all honesty, putting the IV in and taking it out is the worst part for me. It seems so trivial but it is these two acts that bother me the most. Luckily Henry, my IV pole, is with me every step of the way…even if I have to go to the bathroom. He can be a little smothering at times, never leaves me alone :). After the IV is in it is really a cake walk. I get chilly, but they supply me with heated blankets. I feel every home should be equipped with a blanket warmer — the moment a warm blanket is draped on me, I forget everything for a few moments! And that isn’t the chemo talking.
The first drip is just to hydrate me, and I will say that I feel a little lift from it. After about 1/2 hour they push in 2 different medicines into the IV. First the Methotrexate – which I don’t even notice. The second is Fluorouacil (or 5FU). The F.U. part is appropriate. While they push this into the IV I get the weirdest sensation – pins and needles in my nose, over my eyebrows and on top of my head. Kind of like a Wasabi headache. Then the final drug is a 30 minute drip. This is cyclophosphamide. Also rather inert as far as side affects go. Then the hydration continues for 30 more minutes and I am good to go.
I definitely get a little tired for a few hours, but the steroids that I took, when I first get in the chair, begin to kick in. They won’t wear off for a few days so I will skate along until then. I am presently packing my kids for sleep away camp, and that is way more torture than the Chemo. The packing that is, not the sending them to camp. The bags leave Saturday, so I need to get a move on. Frankly the steroids have me hyper enough that I may work through the night.
Timing is everything! And with only 5 times left to go, who knows what I can accomplish next time!
Talk to you soon
I saw this commercial this morning and it reminded me of an email Scott and I got Sunday evening from the NY STate Lottery. It said that we had won a prize. An email I thought, could we must have won the big prize. All of a sudden my mind was a flutter with the possibilities. See I have a lottery subscription. Years ago I picked numbers and they are played weekly, and I pay for this service up front. This way I never have to remember to buy a ticket (and now that my memory is severely flaky, this is a good thing to have). Honestly, I very rarely win anything, so when I got the email I was a little skeptical. I know, if I do’t win, why do I play? Ya gotta be in it to win it!
I went on to the NY Lottery website and started seeing the numbers meant anything to me. My birthday, The kids birthday, Our anniversary, something. Nothing! Was it one of the quick pick numbers I picked. I began to search the house for where I put that piece of paper wit the numbers on it. That was an exercise in futility. I hid that paper 5 yrs ago. If I still have it it is lost in somewhere in the ordered chaos I call home! Scott and I started thinking about what we probably won. We probably won $5,000 or maybe even $10,000. Not the biggest prize, but maybe one of the these. It isn’t unheard of — my brother won $5,000 once, and we even know someone who won the Publishers Clearing House (they won it in the 80’s before we knew them). So maybe it is our turn.
Anyway, I couldn’t find the numbers, so scott and I were going to have to wait until the following morning. He called me when he got to work in the morning just to remind me to call (proof that my really isn’t at full capacity — cause Scott, on a good day, doesn’t have the memory that I used to have). I waited till 8:30 and called. I spoke to a lovely woman name Amy. I explained why I was calling, and gave her my full name and other identification, to verify who I was. She put me on hold for what seemed to be 5 minutes, but was just a few seconds.
“Mrs. Abramson” she said “I am happy to tell you that you have won $1.00, and that we will be crediting your account.” “1 Dollar”, I said “why would you notify me for $1?” “It is our new policy to notify subscription holders with any win at all.” What a let down, I thought. Now if I see an email from them I will think “Big whoop, I only won $1.”
Being rich must be fun. I am sure it has it’s down sides, but I can’t put my finger on what that would be. And of course then I thought…
I know that I say this in different ways through out all of my blogs, but I know I already won the lottery. Soon I will be “fully” healthy again, I have the greatest family and friends anyone could ever ask for or wish for, and all of you who follow my blog have been so supportive; and for that I am truly blessed. So that makes me a winner all the time — but their ain’t nothin’ wrong with cash either!
Below is the other new commercial from this company — admittedly I don’t really know what the product is, I jsut think the commercials are really funny about thinking your rich!” So I hope you all enjoy them — Good for a mid morning giggle.
Laugh a little with me today.
Sometimes I feel life can get very profound. My viewpoint on things is different today, than it was 4 weeks ago, and even more different than it was 4 months ago. And I guess their maybe some validity to the concept that certain events in your life may just be the result the of hand you are dealt. So if that is the case, can I use the “Cancer Card” to my advantage?
I am not saying to use the Cancer Card for frivolous personal gain….or at least I haven’t perfected that thought yet. And I certainly don’t think the Card comes in levels – you know like regular, gold, platinum and Black Amex card. But, I am saying that there should be perks to go along with this unwanted disease. So I plan on making it my goal to perfect the proper etiquette/uses for this card.
Now I was thinking about all the really nice things people have done for my family and me for the last several weeks. I am truly appreciative and touched, and I don’t want to imply that I have used my illness as a rouse to get things done for me. This has a much bigger scope I think.
Let me use last night as an example. We went to a great BBQ at friends of ours. It was 5 couples with all the children. The weather was good, the food was great and the laughter was a plenty. At the next house (also friends) was another BBQ; some bi-partyson co-mingling followed. But just like that a gauntlet was tossed? The skirmish caused by none other than “DESSERT”. Which house had the better Viennese table? And not ‘Just desserts’, but my favorite desserts.
It all began when one of the guests at the other house was sitting with us and explaining the desserts he brought. He mentioned my favorite – a chocolate 7-layer cake with whipped cream- from the Riviera Bake Shop. It is like the original Devil Dog’s – YUM! So later in the evening, when desserts were being served, one of our guests mentioned he was heading over to the other house! I proudly screamed out. Get me a piece of the seven layer cake – if they give you a hassle just tell ’em it’s for the lady with cancer! Awesome, I thought- way to use card! Sadly, the gentleman came back empty handed. Deny the lady with Cancer you say…no, no! It was a momentary lapse, a misspoken word you might say. Because the other gentlemen had not purchased the chocolate 7 Layer cake, but instead, bought the Oreo cookie cake. But again life dealt well, because someone from our party had made RICE KRISPIE treats. I think you get the flavor of my culinary likes and dislikes.
Now there are other ways to use the card with and on friends as well. My friend Amy is helping me use the card in places I didn’t even know would accept it. She even uses it for me sometimes (when I am not around of course. She’s great at sharing!). Anyway, she came to picking me up for a Memorial Day shopping excursion to Kohl’s to get camp stuff for the kids. When my daughter and I went to get in her car, I noticed a man in the back seat of her mini van. “What? A gift for me I thought.” No, of course not, but it was her husband, Dan. (Like Amy, he is a hilarious and great human being). Did she bring him along to lift and carry perhaps? Also a ridiculous thought; but because I had cancer, she made him sit in the back of the van so we 2 women could chit chat in the front. I am sure all the extra legroom had nothing to do with it. Still, a fine use of the card I thought!
After retelling the story to my mother, I thought “can I use the cancer card with family though?” I know there will be times that I just don’t feel well enough to travel to family, as opposed to times I don’t feel LIKE traveling to family. I just want to say “I have cancer damn it, just come to me.” I love being with family; my brothers (that includes in-laws as well) and sister-in-laws make me laugh. The kids all get along, and I have a scrumptious new niece that thinks “I am all that” (I can read that in the goggly faces she makes at me…Even though my husband say’s it’s just gas-but he’s just jealous). And, my niece and I will look like twins when all my hair falls out.
Of course I was able to state lots of reasons why I should never use the card on my family, like:
• I would feel “bad” about lying. My mother always said “never tell someone your sick when your not- otherwise you will get sick!”. Okay well that boat has sailed.
• And because family is there to support you always, so you just can’t do that to them.
But a reason to use it would be if we have to drive somewhere (further than 10 minutes) because:
• I love to drive. Ever since I got my license at 17 (some mmm years a go), I use it as a time of relaxation; it is my zen state. Now I must confess this “zen” state is not how I am as a passenger – a source of much heated debate between my husband and I. Because damn it, I do believe in the righteous words of the bumper sticker gospel…. “if you can read this bumper sticker you are way to close.” So relinquishing the “power of the wheel” is very difficult for me.
Anyway, I am still perfecting the uses and the rewards programs of the card; but by the time I do, I think I will already be Cancer free – and my privileges will be revoked! So I guess it is all just a Win-Win or a Laugh Laugh! Now darnn it, somebody bring me some cake – I have cancer for Christ sake!
Sweet day to all!