BUSY LIFE…and loving it


What a summer I have enjoyed.   With my kids in camp, and not a Dr.’s appointment scheduled…Well except for a yearly Gyno appointment, I had an “worry free and health issue free summer.”  I know that is how most people enjoy life, but for the past three summers, as many of you know, either I, or a family member, has undergone one sort of cancer treatment or another.  And this summer…that was not the case…Now, this is not to say that I don’t have friends being faced with this awful disease and treatment, because that would not be true.  And this is alos not to say that I don’t think about what they are going through, or ways I can help them get through it.  I have, however, enjoyed a summer of appointments, and errands, and meetings, and tastings, and dinners out, and visiting friends, and visiting family, and planning for the kids 13th, and…well just all things I have not been able to do for the last 3 years.  All things that are just part of LIFE….and boy was I thrilled to do them all.

With that being said, with my new found freedom, I gave up on the blog for a spell.  And honestly my schedule for the next 3 weeks doesn’t let up much, so my blog may lay dormant until the beginning of October (or maybe even November).  But fear not, I will return and with new inisght into just about everything.  Even though the title remains The Cancer Made Me Do It, I will begin to tackle all different “life” issues, from the same humorous (yet sometimes cynical) perspective.

My summer has also presented a new emotional turmoil.  My Mom and Dad, who I have written of often, are moving to Florida just after Halloween.  This move will give them a new and improved lifestyle.  I am so thrilled for the opportunity my brother and sister-in-law have helped to create; but I can’t help but feel sad about loosing my constant, and loving lunch mate.  Of course, now I have a reason to go to Florida (one other than Disneyworld).  I am thankful to Facetime, Skype and all of these other technological marvels because that will make it a little easier.

So while I am busy with so many things…helping to pack them up and move them just adds more to my schedule.  But, again, a busy life is better than no life at all…

So I bid you good-bye for a few weeks.  And wish you all well…

I will be back.

Enjoy today

Carol

@funnycancermom

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JOY


I have not written in quite a few days, and that is because I have just been on a constant emotional roller coaster. I have dealt with happiness, sadness, angst, anger, nervousness, anxiety. In the end it all produced joy, but what a week to get through, OY! The kids have finished school and finals. (That alone has caused most of the ansgt, anxiety and anger. But that is such a big issue for my school district to face, and this is not the forum for it.) The kids had been picking at each other for 1 1/2 weeks already. It got so bad that they were fighting over who got to use the whipped creme on their chocolate chip waffles first (Homemeade waffles I might add). Even though I knew where all the emotions were coming from. It was driving me crazy. After they finished with finals they had three days to get mentally prepared for camp. Going for 7 weeks. And believe me they love it…but “leaving is the hardest part.”

The kids and I talked over the emotions. We talked about why leaving is hard. And, of course, we had to talk about why it is extra hard this year. Thursday night, as the kids got into bed I went into each room to sit and to talk with them. First Lissy. She told me she was a little scared about leaving me and what “if my summer was filled with me being sick.” How could she have fun if I am not well. (Okay, is she not the sweetest – when she wants to be, that is. Anyone who has a preteen understands that). Anyway, I explained to her that since I am already three treatments in and I still felt pretty good, that I am not expected (or hope) not to react much differently with the next few treatments. And as the end of treatment isn’t until September – which may be when I get the most tired- You will be home to help make me feel better. (and maybe clean your own room for a change — one could only wish). With the thought that she would be home to help, and that she believed “nothing will change” she was settled enough to drift off to sleep.

Then into Matt’s room. He is harder to calm. He is a wonderfully sensitive kid, but can let his emotions run wild sometimes. After talking to him, he also was worried. When he gets emotional, his worries and fears can go the extreme. I understand that; but the great thing about his emotions is that he can pick up on humor as easily as he can pickup on sadness, and well humor is My specialty! So with him I talked about what I would do everyday, and how I would do things to take care of myself. Things that will make me feel better and keep me strong. I promised him I would eat out every night for dinner – to insure I eat well; I promised I would walk the malls shopping every day – to keep my physical strength up; and if I was over exerting myself or tiring myself out, I would either go out to visit my brother at the beach in the Hampton’s, or just sit by the community pool – which ever would insure optimal relaxation. I told him he shouldn’t worry, I have every intention of pampering myself this summer, even if taht meant weekly massages, manicure’s and pedicures. I was determined! (My husband will be quivering when he reads this passage). And after I joked about my plans with Matt, he also seemed calm enough to drift to sleep.

Friday was a mostly quiet day until bedtime. Again Matt was weepy, but only slightly. Scott was able to soothe his nerves. Lissy was way more stoic. She was a little more stoic. As she gets closer to leaving she begins to get quiet and hold everything in. She is like my husband in that manner. She keeps it all inside. I wish she wouldn’t, and I wish Scott wouldn’t for that matter. But I will always continue working on getting her to talk about things. (Scott not so much – he is who he is) But with all that she was staill able to sleep.

Saturday morning we were off to the buses without an issue. We were there a little early; next year we will get there a little later. Matt got a little upset but much less than I anticipated and off they went. Alissa basically knocked me over to get on the bus with her friend; Matt wanted that one additional hug from my Husband for reassurance, and off he went. That is when the sadness started. “I mean really? MATT wanted the last hug from Scott? Really?” I thought I was the favorite parent!” But I will get over that too!

I know they will have a great time, and I know they love camp; so after the buses were gone and after a little sadness, and after a little tear was shed – came JOY. Party at my house I joked! But I did feel joyous! The feeling of Joy came from knowing that my children love me, from knowing how much I me love them, and them knowing I love them; and mostly knowing that they have learned that “leaving is not always a bad thing – and that I don’t plan on leaving in a bad way ANY TIME SOON!”

HAve a great day and enJOY!

Carol
@funnycancermom
or
http://www.riverjournalonline

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Life Lessons, revisited!


The Hat that sparked it all!


In January of 1983, I was walking down Commonwealth Avenue on the way to class. It was brutally cold. I was wearing my Navy peacoat, and on my head was, a Black fisherman’s cap. Not the most attractive look – actually quite mannish – But it was a cold morning, and just couldn’t deal with wearing my wig. So I made a choice. In the appearance conscious world of Boston University — I went Au Natrual! Not such a common look in the 19880′s. Prior to my illness, my choice of friends was not the socially conscious type. They were the “appearance conscious types”…and I am ashamed to admit that I was no better. It wasn’t until I had lost 20 lb. and my hair, that I realized how shallow and lame my viewpoint was.

I quickly learned that I was no longer welcome in my group of friends. It was a chilling lesson, like the winter Boston weather. As I walked to class that morning, walking towards me were two friends (I say loosely). R.F. and J.L. lived in Shelton Hall (Snob Central), just a few doors down from my dorm. So as I was heading towards the Management building, they were heading back towards their dorm room. I had already begun to feel the chill from my supposed friends, but this was the final freeze out. As they got within 5 ft I gave them a meek “hi”, smile, and wave. They turned to each other and R.F. said “Don’t look, thats the girl that’s dying.” I stopped dead in my tracks (no pun intended). I couldn’t believe it. Not only was I an outcast, but now I didn’t even get a name…just “That Girl”! And I was dying; which was certainly news to me! Well, it was an emotional day, but it taught me a lesson quick, and is a huge part of what drives me to always be positive. I believe my positive and hopeful outlook has a direct affect on how others treat me; and how I am able to stay positive day to day. I hoped I would never experience anything like that again. But I wasn’t so lucky.

I have been wearing hats a lot. I have this crunchy, straw cowboy that I love; which, honestly, my daughter hates it on me. But it is a mothers job to embarrass her child from time to time. Anyway, the other day I had to run an around in Scarsdale Village (a very affluent town and shopping area), and I chose to wear the hat (my daughter was not with me). It was lunchtime – a time when the town 1s flooded with high schoolers (decked out in their designer and school labels). As a group of 5 kids walked towards me (3 girls and 2 boys), one of the boys said to they others “Who does she think she is in that yokum hat, I would cringe if that was my mom.” And they all laughed. I stopped dead in my tracks…I had been here before. But the difference is who I am today versus who I was years ago! Slowly I turned…

The kids were standing on line outside of a popular deli. Their were plenty of kids around them, so I thought this is a good time for a teaching moment. I confronted the kids, and proudly said:

I am sorry, was your comment supposed to make me feel bad about myself? I think it had the opposite affect!” As I removed my hat, an audible gasp was heard from the girls. “You have you just insulted a women going through chemo therapy. Did insulting me make you feel like a big man, or better about yourself. Is it only my looks that caused you to try make me feel small about myself? Do you do that to kids in school that aren’t as good looking or as cool as you think you are? How do you feel about yourself now? Not so cool are ya? Maybe next time you will think about this before you pick on someone else!”

And with that I walked away. I was able to over hear 2 of the girls calling the boy a jerk, as they ran towards me to apologize. I believe (or I hope) at least they got the message. Like any good superhero I wanted to proudly put my hands on my hips and say “I think my job here is done!” But even for me that would just be to cheaky.

I do believe, that this is part of the reason I have started this blog…Even now, during my treatment, I believe being a cancer patient and survivor I have learned and grown so much as an individual. I am positive about that! In the end I am BETTER NOT BITTER. And rockin a groovy hat!

Hat’s off or today!

Carol
@funnycancermom

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Call Me, or Don’t. You Decide!


Today I got to go for a walk with a women I know who is cancer and treatment free for over a year. She was diagnosed with a different kind of cancer, more severe, but her prognosis and outlook are outstanding. While talking and walking (a skill I am exceptionally gifted at – really the talking part, but anyway) I realized that many of us that have gone through one of these treatments or another, come out on the other side with a clarity about what is important and what isn’t. I thought today I would talk about this part of having cancer. Not so much the clarity of life part, but the clarity of what annoys me part.

I know that those of you who have not been in this situation (which I hope that you never will be) may feel awkward as to how to call someone who has been diagnosed, or what to say to them when you see him/her. Of course there is no real handbook on what to say, or how to say anything. Could you imagine Barnes and Nobles carrying book that says “Cancer Etiquette for Dummies” or “Chicken Soup for the ones that want to say the right thing to a cancer patient.” Not a best seller. And, Yes, of course everyone is different and everyone wants to hear different things, but somethings I have found to be universally true. And by universally, I am referring only to the people I have asked.

I would like to start by saying how much I appreciate the thoughts and wishes, and I know your meaning is only with the best intention. Your are trying to soothe or comfort — and I know it! Frankly, sometimes you are so off the mark though; so I thought I would have a little fun pointing out some Cancer Etiquette Faux Pas. This isn’t like Donald Trump trying to teach President Obama a lesson in Birth Right etiquette…because where would anyone get the idea that Donald Trump has any idea of what etiquette is…you know if he can’t have his named stamped on it it doesn’t exist! Oh excuse me I went of on a tangent there, but I am back now!

Ok back to our topic, what to say and what not to say and how to say it! Let me give you an example of what not to do. I got a call from someone the night before my surgery. The first no no is that she called me from a her speakerphone in her car; her windows must have been open, because I couldn’t even hear her say who it was. I explained that I we had a very bad connection. You’d think she would the say she will call later, or close her window, or do something to better enhance the “conversation ability factor” but noooooooo, she kept right on talking. Did she not really want to call, but felt she should? Anyway, her conversation consisted of her telling me how much it sucked that I had cancer, Again! How terrible she felt! How crushed she was when she heard the news! And then the phone cut out. I figured she would call right back — NEVER HEARD FROM HER AGAIN!!!!! So let’s put this out to all of you, where do you think she may have gone wrong with this conversation…Anyone? Ok here is a hint — the entire conversation pretty much failed the etiquette test, the soothing test, and the comforting test. A Triple negative — a really bad thing in Breast Cancer results by the way.

Was it just a call for affect, or was she just so uncomfortable that she did this purposefully so she didn’t have to talk to me or hear from me at all. My advice to all of you. If you don’t want to call DON’T — insincerity and bullsh** comes through in the first 5 seconds. Remember Seinfeld’s bit on taking and holding a reservation. “Just because you take a reservation doesn’t mean you know how to hold the reservation.” Same principle, just because you called to be comforting doesn’t mean that you should have called and it definitely doesn’t mean that your words were comforting. Is it really that you think hearing you say how much my diagnosis sucks, will sink in that much more? As if to say, “up until this point I was fine with getting cancer for the 2nd time, but now that so and so told me it sucks I should really rethink my position.” I call it a given that you feel my diagnosis sucks!

Another common statement I have gotten was when the caller tells me “Oh my goodness, when I heard the news I had such a hard time dealing with it!” Again, really — do you possibly think that when I got the news I just shrugged and said “oh well” then moved on. No one wants or seeks out bad news,but now i don’t only have to deal with my own cancer, but I have to feel bad for upsetting you as well! Just sayin’ I got enough on my plate, I don’t need your stuff also.

Other favorites include friends who call once and then don’t call again for two months. And then when they call they automatically let me know how much they have rearranged in there schedule to find the time to call. or they say, “I am so sorry I haven’t called, my life has just been so crazy these days.” My life isn’t crazy at all people. I got all the time in the world. I’ve just been just with an ice cold IV pumping lethal chemicals into my veins and enjoying. Really? And aside from the queasiness and feeling like crap I have all the time in the world to just sit around; so feel bad that the “my life is crazy right now” statement doesn’t sound like a load of sh**! Honestly, I understand that you can’t call every day or week or even month, but don’t blame it on a busy life. I get it, we all find it hard to find time and that is okay. I understand busy lives. But maybe after you upload the pictures of you sitting around watching your kids baseball game to facebook, you can make a quick call to say hi!

And the last and most important is a statement that I know is truly well meaning, just no well implemented. “What can I do for you?” Don’t ask me, because I am a martyr and will say nothing. Tell me what you are doing. “I am bringing dinner Thursday, or I am picking up your dry cleaning Friday, or for the next month you have full use of my housekeeper to do your laundry, cooking, cleaning, driving your kids around. Now that would be awesome!!! So put that in your books as a great gift!!!!

Seriously though, I appreciate and love all of the well wishes. You don’t have to call and talk about the cancer. Frankly, that is why I have the blog, so I don’t have to talk about it 24/7. Call me about the weather, or American Idol, or the Royal Wedding (because yes, I am obsessed wit the Royals) Or just call to say hi! And no matter when it is or how long it has been since I last heard from you doesn’t matter. I am just glad to hear from you.

Speak to you soon.

Carol

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ASKED AND ANSWERED, AND NOT A WORD SPOKEN


dad at busch gardens

Sometimes firsts are good.  The first time you ride a bike, the first time you eat ice cream, the first kiss, the first kid (just kidding both of my kids are terrific).  Firsts are meant to be moments that you will always remember.  But honestly, some firsts you just want to forget.

This is what I am feeling today.  Tomorrow is my father’s birthday.  He came so close to making it to 85.  His death in October was surrounded by such craziness, that I am not sure anytime was really given for grieving.  I mean we mourned, but so much went on in just a few short days of his death that all of those extra emotions kind of got lost in the hubbub.

At the end of September we planned moving my parents to Florida.  Nov. 5 was picked.  Flights were booked, movers were scheduled…and the packing was able to begin.  The process was physically daunting, but even more so emotionally.  My Father was already beginning his final decline (though we weren’t as steep his decline was).  I am sure he was able to register what was happening, and I believe it caused him to withdraw into himself even more.  Many have said he didn’t want to go to Florida…Maybe they were right!  He died on Oct. 21, and the moment the “Shiva” ended, we were hit with Hurricane Sandy; which didn’t even stop the packing and moving process.  Nov. 5 we were on that plan, and off to start a new chapter in my Mom’s life.

My mom and I were speaking earlier.  We speak both talk him all the time, and today my mom said, “but he doesn’t answer.”  Which made me realize something.  He certainly does answer.  He has allowed you to Segway into this new, exciting and privileged chapter of you life, without the heartache of feeling guilty (and you don’t have anything to feel guilty about).  This is his parting gift to you, the woman he loved for over 60 years.  Be happy and enjoy he says…without ever uttering a word.  You and the children deserve it!!!!

So I guess this first birthday with out you dad is also a memory…Know that I wish you here with us…But every day you are thought of fondly, and cherished even more….

 

Happy Birthday Dad….

Enjoy!

Carol

@afunnycancermom

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HOPE


Hope…What an incredible word.  It is what holds us in anticipation, and it is what can spark your individual greatness from within.  It is always looking forward at the possibilities, and cannot be held back in the past.  You hope for the future, you look back at your past.

 

Cancer has taught me a lot about hope.  Of course there is the obvious things to hope for.  I hope I get better, I hope my treatments are not “horrific”, I hope I make it long enough to see my children grow up (that was a big one this second time around), I hope I don’t get sick again, and finally, I hope that I not only get better…but I also hope that I don’t get bogged down by the ramifications of being “afflicted twice”.

 

Hope is what I wake up with every morning.  Some of my hopes are whimsical and shallow.  And that is okay.  While it would be great if those hopes were achieved sometimes, I don’t hold my breath for those. – rather, I enjoy the frivolity of the hoping.  You know those thoughts…”I hope I can lose 30 pound by Friday”, or “I hope I can eat this gallon of ice cream and still fit into my jeans tomorrow”, and of course, I hope to have the chance to meet Hugh Lurie, Hugh Jackman and Zac brown, because I am a huge fan.  These are delicious little nuggets that help me smile on days that aren’t always filled with smiles.

 

Then I have hopes that aren’t necessarily about me, but are about my family.  These are ones that really affect my emotions.  Because these are things I hope for my children, my Husband, my brothers and sister-n-laws, my nieces and cousins, my friends.  I want, no I hope, for them way more than I hope for myself.  My hopes for them are lofty and rich. I hope for them to get what they want, because I hope they will always be happy.  I know that it is important not to always get what you want, but I am a mother first.  And I hope, all the time, I can take away any pain or sorrow my children go through.  But I can’t always do that.  But I am aware that my children also have there own frivioulous hopes…And I encourage them…I think these are what is meant by “Hope springs eternal”…

 

My daughter, for example, hopes to be a star.  Her hopes don’t have a pathway to achieve this, or a definite area in which she chooses to become a star…She just hopes for stardom…and I hope she becomes one as well.  Though, she has no definitive pathway as to what type of “star” she wants to become…her hopes are lovely and endearing (and not unlike many teenage girls), and I hope to help her head that way (though honestly, I hope she finds another hope as she gets older).

 

My son hopes for more simple things.  New videogames, to be better at certain sports, and his biggest hope is that he never has to do homework again.  But of course this last one is not gonna happen.  But he can always Hope.

 

My mother, well I think she hoped that she would be okay when she moved away.  Well we were there this week, and boy she is okay.  She has a brightness and lightness to her spirit.  One which I haven’t seen in so long.  Her melancholy is present, but is being trimmed with hope that her next stage in life will have joy and adventure.

 

So I guess I just hope all of those I love to get what they hope for.  Because then I get what I hope for.  Who could hope for more!

Enjoy Today.

 

Carol

 

Funnycancermom

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Who’s In Charge Here?


Recently, my kids and I were talking about the show “The Biggest Loser”.  There was a commercial clip on showing Jillian screaming at one of the contestants.  I said, “wow she seems so mean, how can that be motivating.”  I was sure my children would agree with me (since they are forever telling me I’m a yeller, and it definitely isn’t motivating for them).    But, yet again, my kids surprised me.  My daughter said, “Mom what she is doing is changing their lives.  She is helping them get better for their kids and that is a good thing….you just yell about homework and stuff.  Totally different!”  Matt said, “having to answer to someone all the time is good for you when you are trying to change something about yourself.”  And while I wanted to tell them that cleaning their room or doing homework, or even being true to yourself are also good ways to change something about yourself…But I thought better of it!

 

It did get me thinking, however, is being accountable for our own actions and being true to ourselves the same thing?.  For example, I was on Facebook the other day….just roaming through to see what people (“friends”) have posted…I like to go on a few times a week and check-in.  There are always the same 3 “friends” that post 20x times a day.  No exaggeration…If I were being true to myself, I would send them a message saying, “99% of the stuff you say is absolute drivel.  Why do I need to hear that your dog is tired, or you were tired after taking her for a walk, or that I should be Happy because it is Sunday, Bitches!” Really, what is the purpose of that?   But, I am accountable for these words, and I realize they seem harsh and uncalled for (though true).

 

These Facebook dwellers live their private life in this public venue but instead of being angry at them, I should feel more sympathetic towards them…I guess it is a modern day depiction of Shakespeare’s soliloquy in Macbeth…

 

…Life’s but a walking shadow, a poor player

That struts and frets his hour upon the stage

And then is heard no more. It is a tale

Told by an idiot, full of sound and fury

Signifying nothing. — Macbeth (Act 5, Scene 5, lines 17-28)

 

Accountability is something I struggle with.  I believe it has a much-needed place in our daily lives, but often gets over looked.  Should we be true to our self or accountable to others?  Are they mutually exclusive?  In being true to myself as of late, I realize that I need to be more accountable to others for things.  Which brings me to my latest project. And back to The Biggest Loser for a second.  Since being sick, I have struggled with my weight.  And weekly I became more and more unhappy with the fact that as disgusted with my weight problems as I am, I have no one to blame but myself.  I have avoided the gym, I had given up on “healthy eating”, and I had found every possible excuse to let myself get this way.   I need to be accountable for that if not to myself then to someone I believe can help me.  So I have joined a group of 28 others on this journey.  I officially start Monday, but I am getting myself ready this week.  For the next 8 weeks, I have to answer to 7 other team members’ about what I eat, and how many times I work out, and how hard I work out and yes, even what I weigh.  I need to prove weekly that I am committed to this and to the team.  There are 4 teams pitted against each other, and I need to pull my weight (metaphorically and physically). …And while this is not the televised version, the benefits can only make me feel like a star.

 

So I have chosen to use my accountability for Good instead of Evil…Personal growth instead of Public ridicule…I will keep you all filled in.  And while my blog may appear on Facebook….My weight never will!

 

Go team Black….

 

Enjoy today

 

Carol

@funnycancermom

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Thank You Nannette Stueck – The Follow Up


IMG_2078Well after I wrote my November 30th blog about Nanneette Stueck, I received over 100 public and private comments on potential ways to find her. I listened to several comments and tracked a series of addresses to Maine.  I sent off a few letters hoping that at least one of the addresses I got would be hers.  But as you see from above, all of my letters were returned …NOT DELIVERABLE AS ADDRESSED.  It seemed to be a dead end.  I wondered if I was going about this the wrong way…But in the end, odd as this may be, it was her that found me.

 On December 17th I got a note posted to my LinkedIn account from Nannette, that simply said she was trying to find me and gave me her email.  I was thrilled.  The next day I got this…(I have taken out the personal details).

 

Oh finally, No, my cousin forwarded your blog Sunday.  I have been attempting to contact you since. Here’s some of the mail I’ve been trying to send you. I tried to post to your blog but it said something about needing moderation and now is gone,  linked in must have worked, I tried  Carol@fXXXXXXXXXX but that didn’t work

Carol -

Last night after watching / helping my daughter XXXXXXX decorate our tree I launched my email, The usual advertisements to be deleted, a note from my sister to call my mom in the face of Friday’s tragedy in Newton, and a note from my cousin Eileen in Pasadena, CA.

She stumbled upon your blog and found your note to me, and she forwarded it, in case you hadn’t found me.  She said she was later night, should have been asleep internet searching….I should probably ask what brought her to a cancer blog….

You are the first person I think of when someone says, “IF you know someone who has been affected by cancer,” but of course I had no idea how many new ways it would touch you in the 28 years since I’d seen you last.

I remember our quick and easy friendship and our talks, I remember our brief rooming while you continued your treatments at Tufts.  I remember too, the odd way people reacted to your cancer and I remember your strength.  I also remember how when you had beaten Hodgkins and graduated that you broke down and cried to me on the phone so scared about the future, and I was in such awe of it, like after all the bravery, why now??  Why is she so scared now, and so brave in the thick of it.  I have cautioned everyone I have known since when they have struggled with cancers, mostly breast and said be careful – watch your thoughts, be ready for the crash, and call me if you need to talk.

I, to date, have avoided the cancers personally as well as with immediate family members.  Great girlfriends and neighbors have had lumpectomies and mastectomies, all very brave and beautiful survivors! But, you were my first….and so you remain the first thought.

Great to find you and I’d love to stay in touch!!!

Love, Nannette

And even greater gift was that she was relatively local over the holidays, and we got to meet for breakfast.  I got the chance to meet part of her family.  They are as warm as Nannette.  And if I didn’t say it to you that day Nannette, you look great…and happy.  I have done nothing but talk about re connecting with you.  I know I owe you an email,.  I have been so busy telling and re telling everyone about that I don’t  didn’t even email to say what a great breakfast it was, and I look forward to many more meetings.

I realized I got a few details wrong, Like Nannette went to Simmons not Northeastern, but we figured why I thought that….But all in all our memories coincided.

What a great Holiday Gift it was to reconnect….It was a real great feeling finding you and thanking you.  I believe it completed  closure on that time in my life.  And gives me the chance to create a friendship with someone I know has a great heart!!!

New Resolution #1.

*Be grateful and always say say thank you to those you feel deserve it!

CHECK

 

ENJOY TODAY!

 

Carol

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Thank You Nannette Stueck


Over Thanksgiving weekend, my children, my husband and I were talking about sleepovers.  My son asked if I liked them and/or if I was ever scared to sleep somewhere else.  It was seemingly innocuous question.  Yet it caused the flash of a memory that I hadn’t thought about in a longtime.  It was almost movie like.   The memory was so vivid, and the emotions it conjured were so real.  So real I wanted to tell the kids all about it.  This is what I told them…

There was one time that I was afraid from being away from home.  As you know, I was diagnosed with Hodgkin’s disease when I was a senior in College. I was operated on around mid-December, and Christmas break was coming up.  It wasn’t easy or quick, but I made the decision to stay in Boston, and have the treatments there.  Away from my family.  The dorms would be closed for the holiday, so I needed to find a place to live for the month.  I guess I could have stayed in a hotel, but I didn’t want to be totally alone.  There was this other college senior I worked with at Copperfield’s.  Her name was Nannette Stueck, and we worked together at a bar between B.U. campus and Northeastern (where she went).  She and her boyfriend (now husband) Scott all worked together, and we had become somewhat friendly.  When I told her what was going on, she immediately offered me a place to stay for the month.  Her roommates would be going home for the break, and she didn’t want me to be alone for the holidays.  A single selfless act…

I was touched by her invitation, and moved in the next day, because two days later I was to start treatment.  I woke up at 5 a.m. and travelled via Trolley, then train to get to the hospital.  It was bitter cold, and dark, but I went.  After about 2 weeks, I began to feel the side effects of treatment.  Initially, food became tasteless. Everything I ate scratched my tongue and throat.  It was like swallowing extra course sandpaper.  Nannette decided to spend a day trying to cook different things that I could eat.  She made puddings, and jello’s and just a whole bunch of stuff.  It was unbelievably sweet.

A week later, I woke up because I felt a draft on my neck.  It was about 4 in the morning.  I got up and checked the window, but it was closed.  I checked the door to my rom, but it too was closed.  I couldn’t figure out what it was, but it was almost time to get up anyway, so     I went to switch on the light to the room.  It was then that I realized why I felt the draft, and I began to weep.  There, on the pillow, was a thick clump of my hair.  I couldn’t imagine that it would fall out like this.  But there it was Nanette must have heard me crying.  She came into my room and sat with me.  Told me you could hardly tell.  I knew she was lying, but she said it in a way that made us both laugh.

Nannette Stueck was my hero then.  She made me laugh and forget what I was going through!   Most people thought my decision to stay in Boston to get treatments was odd, at best.  But I knew I would never have gone back to finish my degree if I left.  I needed to continue, to go on as though nothing was wrong.  Because the alternative was that everything would stop.  My college career, and my life…And Nannette got that.  She saw I was right to do it, and made that month okay…Fun even!

It has been years since Nannette and I were in contact.  With Facebook, I have hoped that I would find her over the years.  I try.  I put her name in, but nothing comes up.  So Nannette Stueck of Ridgefield, Ct who is married to Scott from Sudbury, Mass (maybe Swampscott…I don’t exactly remember where in Ma. Scott was from.  Though I do remember the gorgeous church you got married in).  Because of you, I put every effort out to help others; whether I know them or not.  It is a truly fulfilling feeling to help others.  I thank you for introducing that to me!

Nannette, I hope you are well and happy!  I would love to find you, but understand that I may not.   I want you to know that I tell my kids about your kindness all the time!  I hope to one day say THANK YOU in person!  Your selfless act o kindness changed me forever.

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My Dad


 

3/8/1928 – 10/21/2012

 

Please let me begin by saying that my mother, brothers and I thank you all for being here today to celebrate the life of our Dad, Herbert Grossman. My brother, Neil, being reticent to speak in these situations, has agreed to let me speak on his behalf. Our Dad was a multi-faceted man: And facet is such a befitting word to describe him, because it connotes a precious stone . And that is just what he was. A jewel; a diamond amongst lesser stones.

Our Dad was a man with a modest and tumultuous upbringing. Yet he forged an upward path early on. He started in the garment center by accident, but he was lucky in that he had a real passion for what he did. He found success and achievement within his first year. From that point on he would strive to create the best product possible…No exceptions and no short cuts. Believe it or not this was his greatest strength and also his biggest weakness. He truly was an industry legend.

He believed that as much as you got, you must always remember that you had to give back. Tzedaka is what they call it. There are many memories of Dad reaching into his pocket to give a dollar to someone in need, and often also stopping and having a conversation with the person. It was our Dad’s way of saying, “I am here to help if you need.” He was generous to a fault…it was even Scott’s and my wedding, when (after a few cocktails) he began to tip the entire wait staff who where wearing Tuxedo’s. (Which was a long list…because it was a black tie affair.) Thankfully our friend David followed him around to re-collect his generosity.

Another facet of our Dad was his incredible sense of humor. He was dry and quick witted. His jokes had us rolling, but mostly because he was laughing so hard by the time he came to the punch line. We couldn’t help but laugh along. We aren’t really sure if the jokes were as funny as we think they are. But we certainly remember the laughing. Another facet was how he loved spending time with his grandchildren. His pride and utter joy was always apparent when he spoke of them, played with them, or showed pictures of them to friends and acquaintances…he would just beam. Jane and Elysabeth were blessed with many good “grandpa years”. He never missed a birthday party. He loved to scoop them up in his muscular “boxer like” arms and chepper them on the face. Both of you would coo with glee. Sam, Will, Matt and Alissa didn’t have as many years with Dad at full strength, but the love and joy he had being with you 4 was no less. All of you were the truly joyful part of his life. You were a big part of that dazzling smile, and definitely what caused his inner glow.

There was one facet that sparkled brighter than any of the others. The brightest spark he gave off was the one that illuminated the love he had for our Mom/his wife of 56 years. She truly was his world. He even hired my mom to work for him back in the 80′s. For 30 years they would wake up next to each other, go to work together, spent all day at the office together, had dinner together, and came home; just to do the same thing over again the next day. They were true partners, soul mates…. in life, in love, in every way possible. Their love was special…it was epic.

Our father was a man of great convictions. Right or wrong, he was never indifferent. He did things his own way. And that held true to his death. He made it strong to his Matthew and Alissa’s B’nai Mitzvah. Being ever present in a room surrounded by his family and cherished friends. It was almost like he had orchestrated his own going away party. And in the end, he wanted just to go off quietly, and rest…which he did. Not a complaint.

Dad we love you truly, we will miss the twinkle in your eye and the mischief in your heart…. we know you are peaceful and at rest. Something you haven’t been able to do for many years. We feel your love, and we hope you feel ours. Rest well Pops (as Neil liked to call him)…We Love you,

 

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Playing For Pink, Irvington Puts Their Best Foot Forward – River Journal Online |


Playing For Pink, Irvington Puts Their Best Foot Forward – River Journal Online |.

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Maturation


Yesterday was visiting day at my children’s camp. This is year number 4. I can tell you the difference between them this year and the years before was huge. Their whole demeanor was one of ease, and happiness and contentment. It was just so wonderful to be with them.

Frankly, in years past, In years past, I always enjoyed seeing them, but the day had a different feeling. The first hour was usually calming one of my kids down from the anxiety of us arriving. I mean talk about a bull in a china shop…We parents storm the camp much like they stormed the beach at Normandy all those years ago. We throw our stuff down, reserve our space for the day and then go charging to the bunks. (This does present a problem with twins, because my husband still haste part the car…but we work it out every year). I watch as parents push kids out of the way just so they can get to their won kids 1 or 2 seconds earlier than the next mom. I think Sasha Baron Cohen would have a field day using “visiting day” in one of his satires.

Anyway, even though visiting day was from 10-4…The 1st hour was getting the kids calm and the last 2 hours were spent calming them down for when we left… But this year my kids were totally different. More relaxed, more self assured, more, “go with the flow of the day”…and for the 1st time I have to say…Visiting Day wasn’t long enough. We talked and played and roamed around. It was just nice. and I thought why this could be?

Yes my children are getting older, and that is a big part of it. But I realized, they had “no worries” this year. As much of a relaxing summer it is for me, it is for my kids as well. Last year I had given Alissa’s bunk “THE CANCER MADE ME DO IT” bracelets.When I arrived this year many of the girls were still wearing them…which was lovely . Many told me how happy they were that all was okay now.

Later I ran into an old friend (really an old Boss…but he was a really good boss so I considered him both). And he new about my year last year, and asked me about the blog and about the foundation. I was touched that he knew all theta was going on. Throughout the day I ran into women who are parents of campers who asked about the blog and the foundation…and they were also followers…also very cool. Later the kids and I were sitting and talking. I mentioned how nice it was that people asked how I was doing…my son Matt said something that struck me to the core.

Mom we told everyone last year how hard you tried to make things seem okay…This year you are okay and things are easier…Their are other kids in camp who has someone in their family going through cancer now…and a few have come to us and asked questions. I tell them what you always told us…There are some bad days but mostly the days are really okay…and honestly, have family and friends who love me…makes everything sealable….

He said it in such a way that I was stunned at how grown-up he sounded. I was so proud to hear them talk about it this way…At the end of the day, the good-byes were tearless, but still warm and loving…They both were glad for the day, and look forward to coming home in 4 weeks. But are filled with happiness to stay at camp and “play” with their friends for 4 weeks. They are in a great place, and spend their days laughing and loving life…and this year not fearing what is going on with their Mommy.

Cancer is a disease that does more damage than you can imagine. Their are many, many great charities that are working hard to find a cure…It is the day to day issues that I chose to focus on though…the family, the kids and how it affects them is what made me want start this foundation. We can help each other get through it…Cancer is still a growing problem. My illness made my kids mature a little quicker than they might have (and trust me this is only in certain areas…I still can’t get hem to make a bed or clean a room). But all in all, Maturation is good.

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CONSUMPTION


What can I say, this is my summer to enjoy.  My children started at sleep away camp 4 summers ago.  Honestly the 1st summer I was to consumed with whether the kids were enjoying/having a good time or not.  The 2nd summer, I had it a little easier — but my sister-in-law had been going through chemo so I  travelled out to help her a few times, so it was not a totally relaxing summer (no complaints though, I was happy to go and help).  Then of course last summer was my turn…and needless to say, 0% relaxation was involved.  Chemo, my Mom, and other family issues made for a summer I never want to repeat (though the kids enjoyed camp).  So when it came time to think about what I wanted from this summer there were a few different scenarios.

1st – I wanted the kids to have a great and stress free summer….With nothing to worry about….CHECK

2nd – I want everyone to be healthy and happy…CHECK CHECK

3rd – I want to relax and do what I want, when I want and how I want….CHECK CHECK CHECK (so far)…but this last has lead to a small issue….

When I was young, I remember hearing stories about relatives (usually my grandparents siblings) had been taken by CONSUMPTION.  It all seemed so common, and I could nt really understand what it was they were talking about.  I gathered what they were saying was that CONSUMPTION could kill – and often did.

We since my children have left, I have consumed massive (yes I mean Massive) quantities of food…I have been eating with abandon (an odd old saying, but seems fitting).  And as I got on the scale this morning…I THOUGHT I WAS GOING TO DIE….FROM CONSUMPTION OBVIOUSLY!!!!

I am back, and I missed writing to you all, I am going out for a walk now (because won’t that take off a good 5 lbs?)  Health and Happiness aside, I really plan on enjoying this summer…but maybe I will get out more and consume less  OR NOT!

ENJOY

Carol

@funnycancermom

 

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Nature’s Blessings


Today was an exceptional day.  Tis morning I received an email from my neighbor who was on her way out to church.  There was a newborn fawn at my front door step.  I open my garage door and went around to the front to witness this tiny miracle.  (Who by the way in few years I will be cursing fro eating up all my plants…but in the mean time exudes “AWWWWWness”…cause that is what you say when you see it).

 

Anyway, this small, adorable Bambi like creature consumed most of my day; I had several friends stop by to witness it.  Later in the afternoon, I actually got to witness it take its first steps.  What a joy to see. A thunderstorm rolled through which gave Bambi a little scare, so she/he went seeking some cover.  And she found it amongst my Oregano plants….A natural instinct to hide and protect oneself from harm.

 

 

Today I learned that the mom gives birth and then puts the baby somewhere for a while she heels from giving birth.  She places it somewhere safe from other predators. Which was perfect for me, cause all I could do was watch with wonder.  The mom then comes back to collect the baby.  Witnessing this whole process was a gift.  One which I will cherish and talk about for a while. Of course I also thought,  how great would it be to give birth and then take a few days off?  Heel and come back to care for your child (children in my case).  AWESOME……..

 

That Mommy passed around for a good hour, until it was safe to collect her baby.  She placed the baby in a place she knew it would be safe until she got back.  Her maternal instincts were in high gear.  Just like us humans. Watching this I realized how wonderful the cycle of life really is.  How similar we are to many other living creatures.

 

Nature versus nurture…in this case Nature absolutely brings out the desire to nurture.  The two are conjoined in many aspects.  Interestingly enough it is the basis for which my foundation is to be built.  I feel compelled to help nurture others going through their cancer treatment.  I want to help them and their families survive the day-to-day issues that come with the disease.  It just seems so basic a cause…so Natural…And with the new plan that the marketing team has outlined…Iwill have my chance to Nurture because it is what come naturally to me.

Enjoy today!

 

Carol

@funnycancermom

 

Just like Bambi and her Mom…AWWWWW

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WHEN IS ENOUGH ENOUGH!


I guess it is weird that I can express my emotions better in word than I can in real life.   I just seem to be able to express myself in the right manner…not facing anyone.

If I looked forward at how I thought my life would be at the age of 50, honestly this is not what I would have envisioned.  I would never have seen the second cancer, and I would never, never, never had seen my Mom getting sick.  But life is funny that way.  All the things you don’t foresee…they eventually get seen.  Lately I have seen a lot more people I know facing what they never could have foreseen, and I wonder why that is.

Then I made an odd realization.  It is not just me…but a little bit more global than that.  On Facebook, yesterday, I noticed 11 different “friends” post some saying about how “times are hard but they will get better”, or “life may have thrown you a few curves but things will get better…”  All of them waxing philosophically on how “that which doesn’t kill you makes you stronger.”  Hit songs are being written to remind us of this.

But here’s the truth…DAMN IT I (and in many cases WE) AM STRONG ENOUGH!  I don’t really want to be any stronger, so if you could give us a break on the “life lessons for a while…I would truly appreciate it!”

Be Well!

Carol

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Building on the Foundation


Today was going to be a busy day for me.  I had Blood tests and Dr.’s appointments…All pre-scheduled check-ups.  Or Check-ins on my “post-cancer” progress.  It makes it asier for me to think about all of this in the “post” sense…because I view it as something from Way Way back in my past (even though today, ironically, is 1 year since my first Chemo treatment).   As I thought about my past, for some resin I became very nostalgic.  In between my appointments (I mean that both chronologically and geographically) I made a stop at the house that I grew up in.

While driving up the hills that lead to my street, I felt eerily at home…like I had never left.  (Truthfully, the last time I did live there I also had cancer, so I wasn’t totally off base).  The house has been altered…I know that from friends who used to live on one side of us (and whose house was totally redone by new owners).  But with regard to my house, they seem to have left the appearance of the front alone. I understand that the pushed out from the back of the house.  And seeing it today I understand why.  The house “shows well”.  It has good bones….The foundations are solid, so from that you can build or add on.

That is kind of like me…From the outside I “show well”.  You wouldn’t really pick me as the one to get cancer twice.  But like my house, I have a good foundation.  The Dr.’s have always said I was in great health for someone who is ailing.  And that good, solid foundation has served me well.  In my father’s case he, too, has a great foundation. …Unfortunately for someone with advanced parkinson’s that can be both a blessing and a curse.

Foundations are important.  As I work to start my charitable foundation, I have come to realize how important it is to make  sure it has the strong “sub structure” to give it staying power.  To enable it to always “show well” and promise to help others who didn’t have the support structure I have had.  I hope this foundation can stand the test of time, while it keeps up wit the needs of the times…

Foundations are important, because with out them our world has nothing solid to lean on.

Have a great day!

ENJOY

Carol

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HAPPY!





It doesn’t matter your “holiday” belief.  They all seem to begin with HAPPY….


So what ever you celebrate…BE HAPPY!

Enjoy the holidays….

From the Funnycancermom

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The Why Me Factor


Okay, I am an up kind of person…and I usually see the positive in almost every situation.  Today, however, I am taking a different approach…one, which I feel I have earned:  It is the right to the bitch about the small stuff.

A few months ago, I had one of my final surgeries.  While I was under anesthesia, I some how bit down hard on the intubation tube and cracked my front tooth.  “It happens so infrequently”, the anesthesiologist told me, “but it does happen.”  So straight from surgery my friend “SUPER NURSE AMY” drove me straight from surgery to the dentist.  Dr. Lipari was so nice.  He reviewed the mess my mouth was…(this was yet another bit of destruction the radiation from my early bout of cancer had caused…It really has been just the gift that keeps on giving isn’t it?).  Anyway, he was as sweet as he could be…and let me know that I he could fix the tooth, but in all actuality I would probably need an implant.   Yikes I thought, but had really put all that he said on hold…and went on with my day-to-day existence.  That is until yesterday.

I have been on weight watchers for the last 6 weeks, and on Friday I was craving something crunchy.  Trying to be good, I got an apple from the fridge, and took a bit.  The moment I bit in, I knew I had done something wrong.  I knew with this tooth, apples could only be eaten if I cut them into slices.  No direct biting.  Well it was to late.  I felt that I had loosened the tooth.  So I would call him on Monday so that I can go get it re-glued.  I went on with my day, aware that it was loose, but it still was intact.

Anyway Last night we had dinner at Super Nurse Amy’s house.  Amy and I got to enjoy the new H MART grocery store during the day, and then we all met up again for dinner.  Our other friends Elaine and Joe were also with us.  It was a great meal of Crunchy Noodles & Veggies, Panko Crusted Salmon, String Beans and Salad.  YUM (just a little bragging about the food, even though I didn’t cook).  After dinner we all sat around, and I was talking about my tooth being loose and how annoying it was.  Then BAM!  Mid sentence the entire tooth (post and all) fell out of my mouth.  I couldn’t believe it.  It was my front tooth…. so when I smiled you saw, nothing but air…I couldn’t have looked my back woods if I tried.

This morning Amy took me up to Dr. Lipari.  He was so nice.  He actually met me at his office on a Sunday Morning…. How many Dr.’s would do that.  He has put the tooth back in, and re-affirment that an implant is needed….which I will deal with soon.

But after I came home, my friend Meredith asked how I was?  And here is what I have to say to that question. (which I can’t really say but it is how I feel).  Physically I am fine.

Emotionally though, I wish this kind of stuff would stop happening to me.  I know that “this should be the worst that has happened to me” and it definitely isn’t the worst.  But if you put it all together I have had enough of these “I could have been worse” situations.  I don’t wish ill on anyone, but I could use a break from all of this.  A span of “how lucky you are that this has happened to you vs. I am sorry this has happened to you.

I look at the luck my family has had with me getting all these things…I drastically lowers their odds of getting anything.  In a family 1 out of 5 usually gets cancer (between me and my brothers I have covered their odds 2x).

I swear that this filling of being beaten down a little doesn’t last to long.  But I thought you should know that even though I am up/positive 95% of the time.   Even I have my down slides.  And it is perfectly normal.  For you Susie, going through the chemo and having the bad reactions, can make you mad…it is okay and all of those around you have to understand that you are allowed to have moments of anger or depression.  You bounce back….

By the end of me writing this, I already feel better…. but I am okay that I was annoyed for the last 24 hrs.

And I guess that is what is important….It is okay to feel bad, or feel like it isn’t fair, or like you have had enough.  But it is only okay to feel that way for a while…Then realize how lucky you are to be given the gift that you were given….Friends, Family, LIfe, and the time to enjoy them all….

Enjoy Today….

Carol

Funnycancermom

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